Hey Everyone,
I am sorry for the long delay since the last post!
Kathryn’s RSD continues to spread. The upper left region, primarily the left hand, is now affected with pain and allodynia along with her lower left region, primarily her left leg. Kathryn living life with RSD now in her left hand is more difficult and limits many things including guitar.
All of her activities, her function and her life continue to be very affected and limited. By early June she was asking for another Ketamine treatment. Her last visit was late April after which she experienced only 10 days of partial relief. We cannot know how much, or how long, or if this second Ketamine re-boot will last. We do know that her body was dealing with at least 2 other undetected issues during the last Ketamine that may have effected how well her body responded. We believe that those issues are solved or under control.
We think that Ketamine is well worth another try- we are out of other options.
So, Joe and I are taking Kathryn to Florida for treatment with Dr Kirkpatrick August 4-14. The actual Ketamine infusions are scheduled August 7-10.
During many of these hot summer days, Kathryn continues to find the energy to smile and keep others around her smiling. She spends time with a few friends that understand her needs for very limited activity and lots of rest. She is working on her summer reading and puts on a brave face concerning the next Ketamine therapy.
Many have asked about our health insurance coverage and the need for fund raising. I FINALLY received the figures from insurance this morning and they are VERY disappointing. Here goes:
- Ketamine infusion therapy with Dr K = $10,000
- Anthem coverage = $600 first visit
- $900 following visits
- Our out-of pocket for this upcoming treatment = $9,100
- Gifts for the first trip to Florida = $2,500
We THANK YOU and praise God for this help toward the first trip!
To those who have so graciously offered their help in fund-raising projects, we now know that fund raising will be very necessary. I hope to get busy putting some ideas into action as soon as possible.
“This, then, is how you should pray: Our Father in heaven, hallowed be your name, your kingdom come, your will be done, on earth as it is in heaven. Give us today our daily bread. And forgive us our debts, as we also have forgiven our debtors. And lead us not into temptation, but deliver us from the evil one.”
Matthew 6
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