Kathryn's Pages

We are sad to report that Kathryn will not qualify to participate in the Neridronate study this summer because one of the meds she has used for the last 2 years is not yet out of her system.

However, she is in line to participate later in 2015 or early 2016.

Her pain is very high right now so, since she cannot participate in the study this summer, we are planning Ketamine treatments soon. A 6 week period is required between Ketamine and drug study participation but her pain is too high to delay Ketamine any further.

Along with other clinicians, researchers and CRPS patients and their families, we plan to petition the company who is handling the Neridronate study to ask them to eliminate this particular medication as a disqualifier.

(I apologize for not giving the name of the company or the drug, but that seems best at this time.)

Prayer requests:

• For God’s will and faithful help
• That this drug company eliminates this medication as a disqualifier
• That Kathryn is able to participate in the study soon and does not get the placebo
• That this or another treatment becomes available soon for CRPS
• For relief for all those who suffer with chronic pain

Therefore if you have any encouragement from being united with Christ, if any comfort from his love, if any common sharing in the Spirit, if any tenderness and compassion, then make my joy complete by being like-minded, having the same love, being one in spirit and of one mind. Do nothing out of selfish ambition or vain conceit. Rather, in humility value others above yourselves, not looking to your own interests but each of you to the interests of the others.   Philippians 2:1-4 

As we mentioned in a previous update, this summer Kathryn is attempting to participate in a drug study that requires her to give up two main treatments that help with pain. One of the treatments she must do without for the summer is Ketamine…Yikes!

The test drug, Neridronate, sounds promising. Used and studied in Italy since 2008, the reported results we are hearing: a hundred people treated with Neridronate and a year later those hundred people are still CRPS pain free.

Numerous studies are starting across the United States and CRPS patients are clamoring to be involved. But participation doesn’t come without challenge; Kathryn is attempting to jump the numerous hoops required to be accepted into the trial.

Location of study: The Center for Clinical Research, Winston-Salem NC

Screening for participation: July 13

Dates of IV infusions if screening is passed: July 28 and 31 and August 3 and 6

Follow-up visit: August 10

We pray that Kathryn will be able to make it into the study and through the challenges of participating.

And we pray that she will not be given a placebo drug in the study.

 …but the Lord was my support.
 He brought me out into a spacious place;
    he rescued me because he delighted in me. Psalm 18:18-19 NIV