Kathryn just finished 2 treatments of Ketamine in NC and we are headed home.
Her participation in the Neridronate drug study is rescheduled to October and unfortunately this is the last Ketamine that she can have before the study. We pray that she can hang in there until November on less pain treatment and we wish that drug companies would consider more carefully the daily life of a person with chronic persistent pain as they determine the disqualifiers for pain patients. One med that disqualifies her for the study is still in her body despite 6 weeks without it, but we feel confident that it will be out of her system in time for this scheduled participation in the Neridronate study.
Despite higher pain and lower meds Kathryn has gotten things rolling with college. This week on the way out of town for Ketamine treatments, Kathryn met her VCU Disabilities Case Manager who is very helpful, supportive and kind. We are so thankful for that! Because of CRPS she met an advisor in lieu of a 2 day VCU orientation, she’s taken her placement tests, signed up for a couple of classes and was able to get a parking spot close to class in order to lessen the pain of walking before class. This fall she’ll do fewer classes due to higher pain and traveling to NC for drug study.
Sending our love to you all; we’re so thankful for your prayers!
The unfolding of your words gives light; it gives understanding to the simple.
Psalm 119:130 NIV
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