Kathryn is almost 40 days post participation in a Neridronate drug study where we believe Kathryn received Neridronate instead of placebo …thank you God!!
American clinicians know relatively little about what a patient who has CRPS and has received Neridronate can expect but we hear a variety of results are occurring in American patients. Whereas studies from Italy reported outstanding and uniform results.
Although Kathryn has not yet had the “poster child” result where all CRPS pain disappears, she continues to see improvement that gives us hope and joy!
Some of the improvement we see:
- When pain goes up, which it still does, it seems to be able to come back down. (It’s hard to imagine but for most of the 8 years Kathryn has suffered with CRPS, her pain does not know how to come back down once it goes up. Her pain receptors want to multiply and intensify to emergency levels.)
- She has been able to slightly lower and lessen her medicine. Her meds seem to be more effective on her present pain. (CRPS pain does not go away by taking conventional pain medicine. The number of receptors signaling inappropriately just can’t be blocked by traditional pain meds.)
- She walks without a crutch and sometimes without a limp.
- She can sit up for longer periods of time instead of needing to be horizontal.
- She feels ready to start mild strength building with a physical therapist.
- Less fatigue
- Less defeated demeanor
- More joy!
Eight years of battle with CRPS makes us cautious with our hope but continually prayerful!
We are so thankful for all of you, we continue to pray for all of you in love in Christ! With great love and care we pray for those of you who suffer with chronic pain!
The grace of our Lord Jesus Christ be with your spirit, brothers and sisters. Amen. Galatians 6:18 NIV
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