Are we holding our breath waiting to see how Neridronate holds for Kathryn? And so very important to us… how it will work on all who have CRPS?
We’re trying not to, even when her pain shot up Sunday morning, we are trying to stay calm, hopeful, prayerful, trusting and yes, we are trying to breath normally. Indeed, maybe even daring to taste a little normalcy in life again after 8 years. (Her pain came down again mid-day on Sunday, yay!)
Kathryn continues to exercise and her pain, with the help of pain meds, is averaging between a 3-5 on the pain scale. It takes knowing CRPS to hear those facts as good news.
One may wonder, “Its a big deal for an 18 year old to exercise?” and “Pain that averages halfway up the pain scale and can zoom higher is a change for the good?” The answer is yes, if the person has CRPS.
We are now 3 months post the drug study where we believe Kathryn received 4 IV doses of Neridronate, a drug that is not yet approved for treating CRPS in the US.
Love and blessings to you all! We are especially in prayer for a CRPS friend named Apryl undergoing Ketamine this week, our thoughts, love and prayers are with you Apryl!
Psalm 33 THE VOICE
1 Release your heart’s joy in sweet music to the Eternal.
When the upright passionately sing glory-filled songs to Him, everything is in its right place.
2 Worship the Eternal with your instruments, strings offering their praise;
write awe-filled songs to Him on the 10-stringed harp.
3 Sing to Him a new song;
play each the best way you can,
and don’t be afraid to be bold with your joyful feelings.
4 For the word of the Eternal is perfect and true;
His actions are always faithful and right.
5 He loves virtue and equity;
the Eternal’s love fills the whole earth.
6 The unfathomable cosmos came into being at the word of the Eternal’s imagination, a solitary voice in endless darkness.
The breath of His mouth whispered the sea of stars into existence.
7 He gathers every drop of every ocean as in a jar,
securing the ocean depths as His watery treasure.
8 Let all people stand in awe of the Eternal;
let every man, woman, and child live in wonder of Him.
9 For He spoke, and all things came into being.
A single command from His lips, and all creation obeyed and stood its ground.
10 The Eternal cripples the schemes of the other nations;
He impedes the plans of rival peoples.
11 The Eternal’s purposes will last to the end of time;
the thoughts of His heart will awaken and stir all generations.
12 The nation whose True God is the Eternal is truly blessed;
fortunate are all whom He chooses to inherit His legacy.
13 The Eternal peers down from heaven
and watches all of humanity;
14 He observes every soul
from His divine residence.
15 He has formed every human heart, breathing life into every human spirit;
He knows the deeds of each person, inside and out.
16 A king is not delivered by the might of his army.
Even the strongest warrior is not saved by his own strength.
17 A horse is not the way to victory;
its great strength cannot rescue.
18 Listen, the eye of the Eternal is upon those who live in awe of Him,
those who hope in His steadfast love,
19 That He may save them from the darkness of the grave
and be kept alive during the lean seasons.
20 We live with hope in the Eternal. We wait for Him,
for He is our Divine Help and Impenetrable Shield.
21 Our hearts erupt with joy in Him
because we trust His holy name.
22 O Eternal, drench us with Your endless love,
even now as we wait for You. Psalm 33 THE VOICE
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