Today it was my pure joy and pleasure to accompany Kathryn to a very special Doctor’s appointment where we got to watch her pain management doc tear up her prescription! For the first time in 11 years Kathryn is off all prescriptions for pain!!
She accomplished this difficult change gradually in the last 2 years since our last update where Kathryn was entering into a Neridronate study.
The treatments that have played the largest part in Kathryn’s improvement are:
CBD oil **see more details below
Quell device
Elimination diet
Eating foods according to information gained from elimination diet
Mold remediation in home (see more details on this in past blogs)
Neridronate infusions
Non of these treatments would stand alone well; none would work well without the others. These treatments all play vital roles in her continued improvement. We’ve come to understand and believe what a few smart people said to us when Kathryn was first diagnosed with CRPS: improvement would come with a multi-disciplined treatment approach and with continued effort and learning.
It was a day of praising God for His help, and of thanking Him for you and your prayers for Kathryn and for all those with CRPS and chronic pain!
And it was a great day to celebrate with these caring docs! We are so thankful for their care and help over the years!! And we are all so very proud of Kathryn!!
Update on our last blog May 2017: 2 Years since Neridronate!
Can it be possible? Kathryn’s participation in the Neriodronate study happened 2 years ago, Wow!
Announcing a treatment’s success is something that over the years with CRPS and autoimmune illness, we’ve learned to be more careful. Success can be tentative and results may be complicated. And that is one reason for our 2 year delay in updating this site. You can look at our early blogs and see the hope before, and the disappointment soon after, each treatment.
In Kathryn, without the other treatments listed above, the improvement she has from Neridronate would not hold.
Neridronate played a notable role in helping Kathryn. Originally Neridronate lowered her numbers on the pain scale from an average of 8-9 to an average of 3-4. That didn’t last too long, and now her numbers typically float between 5 and 7. Kathryn says that for her, Neridronate’s best lasting gift is less of those nasty evil CRPS spikes in pain.
**CBD oil: Kathryn uses 1-2 ml of 500 mg MedTerra brand of CBD oil. She has been using it for about 2 months. It took her a little while to get used to the sleepy side affect. It took several weeks to see noticeable results but now she continues to see improvement, including all prescription pain meds GONE! At this time she has not tried topical CBD but plans to soon.
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