We love you so much K!! We are so totally with you in heart! You are the most amazing and storgest person I know,! I wish you all a very safe, and uneventful journey to FL and back. Can’t wait to see you and celebrate with you when you return. And looking forward to a whole new chapter in your life! Love you lots and lots missy!! Aunty J
We love you Kit Kat – and agree wholeheartedly about music. I’ve never had a favorite genre because I need different sounds when I’m in different moods.
Cheeto wishes he could be with you to cuddle when you need it. I’m sure Mom and Dad will do their best — though they aren’t as soft and fuzzy 🙂 !
Hi McDonalds,
Been thinking and praying for you every day.Sarah gave me the info to get in touch tonight. I listen alot to K-LOVE and know what you mean about the music. I too choose to be uplifted and reminded of the promises and faithfulness of our good and gracious God. May he keep you all in his hands as you go through this part of your journrey. Blessings and comfort to you all. Mary Micheel from Milwaukee
I pray for you, your family and your doctors regularly. I know your CRPS is a challenge but God will get you through it each and every day. I can’t begin to tell you how proud I am of the courage and strength you role model for us all. You are a special young lady and watching you grow up has been a real blessing.
I’m so glad you have this website so we can stay in touch. Look for the positives in each day and remember all of us who are members of your fan club. Don’t hesitate to ask for our help cause that’s what we are here for.
Greetings from Charlottesville! I continue to marvel at how you and your family have faced this enormous challenge. I interact frequently with people who experience chronic pain and you are at the top of my list of people who have dealt with pain in as healthy as was as seems possible. May God continue to bless you and give you the strength to carry on. I will be praying for you intensely over the next few weeks as you head to Florida. I (we) hope to see you for Joe’s graduation. Love you!!!
Hi Kathryn,
I loved working with you. You are so fun to teach. I appreciate you sharing with me some of what you are going through. I will pray for you. I hope you are able to get some relief in Florida. Maybe even enjoy the warmth. Thank you for being such a cool person to work with.
Octavia
Hey Kathryn and Family,
I am still in shock to hear this…remembering now back to 5th grade and what must have been the beginning of it all!!! You and your family are in my prayers, and I wish you a safe and positive trip to Florida!! You are a strong youong lady with a supportive family…good things come to good people!!! Praying for miracles in your life!!
Oh Kathryn, you are an amazing young lady and we are praying so hard that this treatment in Florida is the answer. I pray that you will be as comfortable as possible on the car ride down and that you will not be in ANY pain on the trip home. This website is awsome and thank you so much for keeping us informed!
Kathryn, please know that our thoughts and prayers will continue to be with you and that God will perform his healing throught ‘Khani Baby’. We hope your trip to Tampa will bring you much relief.
Love and God Bless
I agree with many others who have expressed that Kathryn is an amazing young lady & David, Rita & Joe are an equally amazing family. Your strength & courage are inspiring. We hold you all in our thoughts and prayers so very often, but especially as you venture off to Florida. Praying, praying, praying that the Ketamine treatments are the ones that finally work to ease Kathryn’s pain. Pretty impressive that support is coming from all over the country! Love, Rick & Barbara Jehu
Dear Kathryn, Rita, Dave & Joe,
You’ve been in our prayers and we will continue to pray for you. May this trip to FL be very beneficial and therapeutic and make a major difference for you. I love your website, y’all did a great job. It will so helpful to all of us who are concerned about you.
Love, Kim & Dave Bayford
Kathryn, Your trip to Tampa offers the promise of many good things for you and the family. I will be praying that all of you discover the healing you need. St. Augustine is known for its miracle water. Surely, Tampa is just waiting for you. When I was a little girl I went to Tampa with my family and brought back a little souvenir. I can still picture the little monkey climbing up a palm tree to get one of the three coconuts. Bring back good memories!
Something that would make this wonderful website even greater…your guitar music.
Love and prayers to you and your family.
Gail Gilligan
Hi Kathryn
In reading your blog it is clear that besides being talented in music you are also an excellent writer. You are in our prayers and we wish you much success in Florida. Sue says to tell you we must go out again for ice cream, Sue’s treat :). Say hi to everyone for us.
Sue and Lorne
Hi Kathryn, Joe, Rita and Dave—Thank you so much for putting this website together—I read every word!! James and I pray for you every day and we are excited about what God is going to do down in Florida. Thank you for giving Him the glory. “And those who know Your Name will put their trust in You, for You, O Lord, have not forsaken those who seek You.” Psalm 9:10 Love you all. Shannon, Jimmy, and James Harrell
Thanks Rita for incluning me on Kathryn’s website ! Its awesome and it will be nice to keep up with the comeings and goings ! The Florida trip sounds VERY POSITIVE ! I will be looking fowars to all the ppositive updates the Dr. will bring to her 🙂 Miss you , Hope all is well ! June
Dear Kathryn, Rita, Dave and Joe. What a journey!!!!!!!!!! My prayers and my heart go out to all of you. Rita you have done an amazing job on this website!!!!! And Dave, you keep them laughing. Joe, what a sweet brother you are!!!!!! And most of all, Kathryn. I have no doubt that you will come away from all this stronger than you are now. A bit of a rough road ahead but so worth it…..no stones left unturned. God’s peace and blessings to you. Love Robin Stariha
XOXOXOXOXOXOXOXOXOXOXOX
Kathryn, I doubt you remember me, but I am one of your mother’s clients. I just want you to know that I have been praying for you everyday and will continue to do so.
Regina Carson
Good afternoon McDonald! I thought of you first thing this morning and pray you got off to a good start on your trip.Kathryn,we and so many others keep praying that the Lord grants you relief from your pain as we know how terrible it can be. Rita, hang in there and try to get some rest along the way. Dave, just keep on keepin’ on. Our prayers continue. Mary M.
Hey MacDonald Family! Praying for a safe trip and blessings EVERY step of the way. You guys are amazing. We will be checking the website to find out how, specifically, we can pray for you. BTW the website is awesome.
Love, The Morgan Family
Rita, I am so sorry I was out of town and missed the prayer time with you, but this site is wonderful and I’m thankful to be included. Praying God will astound you, sweet Kathryn, Dave, and Joe with his peace and blessings this week!
Love you!! Debbie
Hi Sweet Family,
Thank you for allowing me to be included in your website prayer team! Please know I am praying for you all. I pray that God will grant you peace, courage and comfort during this time. Praying for safe travels to and from Florida and that your guardian angels go before you and surround you with their care.
Much love and lots of hugs,
Jean xo
I’m glad you’ve included me in this website as I’ll be wondering how things are going as I pray for you all, esp. Kathryn, and for this to be successful.
XXXX Carol
God is so faithful to bring you to mind quite frequently so I can lift up a prayer for you guys. Deuteronomy 31:6 says “Be strong & courageous. Do not fear or be in dread of them, for it is the Lord your God who goes with you. He will not leave your or forsake you.”
Rita & Dave & Family,
I am so sorry to hear about all your problems, Laurie posted to Renee’ an Renee’ posted to me. I just learned today.My Prayers are certainly with you and your family. I hope everything goes well for Kathryn. If there is anything I can do for any of you, please let me know. Love & Prayers, Marsha Wilmer-Oller
Dear Kathryn,
We prayed for you as usual tonight before Jonah and Ethan went to bed. I also find myself praying for you and your family during the day. I pray that God gives you strength to trust in his love and promises–even when the pain screams otherwise. I admire your Christian maturity and everything that God has graciously worked in you and your family. May God grant you healing.
With love,
Pastor Seifert
You guys are so amazing and I thank you for all of the prayers and the good wishes… We’ve successfully made it through the trip and we’re in Florida settling into our room. I’m a tiny bit nervous for my consultation tomorrow with Kirkpatrick, but with as many people that are praying for me, I don’t really think I should be so nervous. Love you all and many blessings to everyone.
Our thoughts and prayers are with you all! You are so precious to our family. I hope Kathryn will find some relief, but it would be wonderful if God chose to take all her pain away!
Kathryn,
Just a note to let you know that I have been praying for you and your family daily. The following verse helps me cope when I’m faced with challenging times. “Don’t be afraid, for I am with you. Don’t be discouraged, for I am your God. I will strengthen you and help you. I will hold you up with my victorious right hand.” Isaiah 41:10
Love and peace to you all!
MacDonald Family,
You all have been in our thoughts and prayers during this important journey. You are truly a remarkable family. Kathryn, your faith, strength and courage are inspirational to everyone. We will continue to keep you in our prayers.
hey guys. just read your update and PRAY the ketamine knocks the S__T out of CRPS!!!!!!!!!!!!!!!!!!!!! kathryn, i am soooooooooooo sorry about the pain you go through. your mom, dad and joe are very special people….nothing better than your loved ones helping you walk this journey. be safe, sleep well and sweet dreams. lone and God bless
Hello McDonalds,
Thanks be to God that you had a safe trip. We continue the prayers and I can just hear those little Seifert boys voices asking God to keep you all, especially Kathryn, in his care. I too have thought of you so many times each day and taken the opportunity to say another prayer that his will be done. Continued prayers and blessings. Mary
Rita, very recently I stubbled upon a little notebook which I had when we studied the Mary/Martha book. (I never throw those precious things away!) Anyway, I have recorded there our prayer requests. It was April, 2008 and we were praying for Kathryn’s knee damage and therapy, etc. Of course, at that time we had no idea what the future held. I can’t help but notice these requests (for all our children for one reason or another) are right in the middle of my notes on the study and nestled among them were these verses I had to share with you. Ephesians 3:16-21, “that He would grant you, according to the riches of His glory, to be strengthened with might through His Spirit in the inner man, that Christ may dwell in your hearts through faith; that you being rooted and grounded in love, may be able to comprehend with all the saints what is the width and length and depth and height, to know the love of Christ which passes knowledge; that you may be fitted with all the fullness of God. Now to Him who is able to do exceedingly abuundantly above all that we ask or think, according to the power that works in us, to Him be glory in the church forever and ever.”
That is my prayer for you and your precious family. Love you!
K Kudos to my niece, whose
A Admirable attitudes and
T Talents,
H Honorable and
R Robust spirit
Y Yield awesome strength to
N Noble endeavors in her life. I love you and wish you home well and soon.
My love and prayers to Kathryn, Joe, Rita and Dave on this latest journey!
Prayers coming your way and gratitude that Dr. K. is giving you so much information, help and hope! It’s an awesome answer to hundreds of prayers. Do not worry about schedules and appointments “back home”. Nothing is more important and precious than this time you have with Kathryn and the doctors in Florida. We will all be here waiting when you return. Love and prayers!
My prayers & thougts r w/ u & ur family as u find help 4 ur CRPS pain. Thinkings of u & ur famly all the time through thi rough time. please keep me posted.
We just returned home from an LWMS rally — where we were reminded how difficult it can be for human beings to accept God’s timing. We know that he’s a God of love, wisdom and power — and he cares for us. Though none of us welcomes it, we most often grow from adversity.
Garden stones in front of our house read, “With rain in the heart, I grow like a garden.” Rejoice that God cares for you. He is sending you rain to help you grow, not leaving you to shrivel and dry in a drought. May you thrive in the rain!
Remembering you in prayer, I was reminded today that God hems you in – before and behind you – as you walk this road. Asking “Him who is able to do immeasurably more than we can ask or imagine” to meet your need, for His glory. Trusting with you all that our great God hears and answers prayers. Kathryn, stay strong. We are praying for you, and believing for your healing. Love to your whole family, the Foldy5 (Adam, Christy, Ashton, Lauren & Nate)
You have been in our prayers and we hope the treatment gives you relief from pain. Thank you for including me on your website, it has been great to read .
Mary murphy
Praise God for his blessings! It sounds like things are going well as the Lord keeps you all in his hands. Kathryn, you are a testament to all of us who may doubt the faithfulness of our God. Continued prayers and blessings. Mary M
hey guys. hope all is going better that than expected…i know you all miss joe!!! kathryn, i pray that each day you get more and more substantial and permanent pain relief….i wish i could take some of your pain onto myself. so glad you and mom and dad are sleeping…………..ahhhhhhhhh. God loves you so desperately kathryn and wants you to have peace. until the next time……..love and God bless, robin stariha
Thinking about all of you and praying for Kathryn’s comfort and healing, and for comfort and peace for you and Dave. We can’t wait to see your smiling faces back in Richmond soon – but for now, take care of Kathryn and focus on the most important job in your life right now! Hugs!
oh, I have goose bumps & chills after reading today’s update. Sorry to hear Joe had to leave & that K got sick toward the end of the infusion. However, SO grateful Joe could be with you all – his help to you is palpable in your messages. Such good news to hear you all slept & that Kathryn is experiencing some pain relief. Will keep the prayers & positive vibes going this week as the Ketamine doses increase; giving thanks for your excellent doctor as well. Our hearts go out to all of you! You have been among our “rocks” in the past few years; we’re honored to be among yours.
Love, Barbara & Rick
We are so happy to hear that the first treatment went well! Hang in there Kathryn…..God will continue to take awesome care of you! What a special blessing to have such a wonderful facility in Tampa with such a knowlegable doctor. We think about all of you often and keep you in our prayers! 🙂
The Kuskes
Hi guys. We monitor your progress each evening. One down; way to go. Kathryn, when we saw you last summer we were so impressed by not only your wit and charm, but also your fortitude. You have a wonderful spirit, and are an encouragement to others. Stay strong. God bless. Sue and Lorne.
Kathryn I’m very glad that the infusions r helping w/ ur pain. I’m glad that ur pain has decreased as much as it has this quickly. I’m very proud of U & ur family that they’re helping u get through this difficult time. U & ur Family r always in my prayers. please keep me posted on ur progress.
Love & Hugs,
Mindy Ziemer
Prayers and love coming your way! Kathryn’s update was so encouraging and it’s wonderful to see her progress on this journey – physically, emotionally, and spiritually! Love to all of you!
God is so faithful and good even in times of trials – what a blessing for Kathryn to have such wonderful loving family to surround her. His people are continuing to lift you up! Our love and prayers are with you continuously.
Rita: Rhonda Day is my sister and she told me about your daughter. My thoughts and prayers go out to Kathryn, you and your family. It’s nothing worse than watching your child suffer and not be able to take the pain away. However, the Lord is in your situation and will comfort, strengthen, protect and surround all of you with love.
Kathryn, thanks for your update after the second treatment. It is good to hear from you, in your words, how things are going. One word came to mind when I read your post: WARRIOR. You are a warrior, Kathryn. You are so brave. Hang in there, and keep fighting hard. You frequent my thoughts and prayers. Stay strong!
Hey Kathryn,
Hope you will start feeling better in the days to come. I will be praying for you and thinking of you often. Get better so you can dance again! 🙂
I look for your updates each and every day. I’m so glad some relief is already being felt! Can’t wait to see you guys back here. We are thinking of all of you so much throughout each day. Love you guys tons and tons! Hang in there!!! And to add to Barbara’s comment, I really do think that Dave does have another grey hair or two 😉
Big hugs!
Hi everyone! So glad to read the updates and enjoy the pictures. I have been praying. The Lord has awakened me in the night the last 2 nights and Kathryn is on my mind. So prayers are going up around the clock! Blessings to you all. Love and prayers, Mary Kay
Katherine I do not know you but I have known your mom for many years. I know what a kind and loving lady she is so I am sure you are probably just like her. I wanted you both to know that I will send up prayers for improvement for you Katherine, and for RIta’s strength to support you in all the ways that you need her to as your mom, your friend, your caregiver and all the other ways she is called on to help you.
Sincerely,
Betsy Kidd
Hello everyone! Thank you for taking the time to share all your news with us. Prayer is a powerful thing and I’m glad that you are inviting so many to help you in this special way – thank you for that honor. We look forward to hearing more updates from you and pray that God grants you peace and understanding as he leads you on this journey.
learned of you through richmondmom.com. sending comforting thoughts and healing prayers your way. best of luck with the current treatment plan. hoping it brings relief, rest and resolve to continue your journey. {{{hugs}}}
Praise the Lord for all he’s done and is doing for Kathryn. Esp. for “restoring her soul” as he treats her with what is exactly right for her in his Way. Truly “the Lord Jesus is her Shepherd. She will lack nothing.
Oh my goodness, I have tears running down my face. What great news on a Sunday morning! We are praying hard that the pain will continue to leave and I think it is truly a miracle that her other ankle is not a problem! Have a safe trip home MacDonald’s.
So glad to see a beautiful smile on your face, Katheryn. PRAISE THE LORD! I hope you guys are able to enjoy your remaining time in Florida. Praying for your safe return and many more blessings all along the way.
Kathryn,
For some of us, a lower level of pain is still much of a blessing, even though we have to continue on our medication. It is so much easier to not only get through day to day, but enjoy things the pain did not let us enjoy. We will thank the Lord for his blessings and continue to pray daily that he continues to keep you in his care. Blessings and Love to your whole family. Mary M
Have been in Durham this past week holding Cole and praising God for children…your children and your family. I have also been praying for Dr. Kirkpatrick and for the treatment to give relief to Kathryn. Praise God!!!! Safe travels home as we continue to lift you in prayer. xo 😀
Not exactly as I had prayed for – I wanted, of course, for the pain to be completely gone; BUT AS ALWAYS, we have to trust in God’s sovereign grace for we believe He knows what is absolutely best for us. From living with pain in Donnie’s life, I know the reduction in pain is a sweet blessing. Will continue to pray for even more wonderful results and I cannot wait to hear all the ways God worked miraculously! Love you!
Dave, I’ve been reading the updates and hope everything continues to get better for your daughter. You and your family’s faith is strong…she is lucky and blessed to have that support! Have a safe trip back (or hope you had a safe trip back) 🙂
So glad you all are home and Kathryn’s function has improved! We will continue to lift her to the Lord who always sees and knows all we need. Love you!
I am so thankful that you all are home safe and sound and that you got to sleep in your own cozy beds last night! PTL! I know that felt sooo good. 🙂 God’s Plan B is ALWAYS awesome! As we push the button of faith God gladly carries our burdens upon his shoulders. Matt. 6:31 xo
Welcome back to Va…..there is no place like home!!!! We hope Kathryn continues to show and feel progress after your long journey to Florida. Your family is strong and tight which is a blessing to you and all fo us who care about you. Take care!! Tiia and Kevin
So good to hear that Kathryn has had a few good days. The picture is great. Reallyhappy to hear about Prom and looking forward to pictures!! Prayers continue for all. Mary M.
After a diagnosis of breast cancer, my husband and I sat down and make a list of “good” things about having cancer. We thought of 17 things. I can already see one good thing, and that’s the closeness of your family. Can you think of any more? How about you are becomming an anbassador for this illness and you can educate folks!
How wonderful to read your latest post on Kathryn’s birthday! God is so absolutely wonderful! To Him belongs all praise and honor and glory! Thank you so much for allowing us to walk through this with you and your sweet family and to see firsthand what God is doing.
I am so thankful that Kathryn is feeling much better and had a Happy 15th birthday! WOW! The prom date sure was blessed to have such a beautiful young lady on his arm!!! 🙂 Look forward to seeing you soon. PTL for all the blessings throughout this journey. My strength is made perfect in weakness. 2 Cor 12:9
Kathryn, I am so impressed with your website and with YOU. You are an amazing young woman and a beautiful example of Paul’s words to the Hebrews: “Let us run with patience the race that is set before us, looking unto Jesus, the author and finisher of our faith.” Thank you for being such a light. You are an inspiration to many. Bless you. You are in our prayers.
Just returned from Salt Lake City where we attended our grand daughter’s confirmation. The questioning reminded us of all our God has done for us and how much he loves us. And he always keeps his promises. Stay strong as you fight the pain.We will continue to pray that the Lord reduces the pain and leads you to make the best decisions in difficult situations. Know that his love has no bounds and will never end. Blessings to all. The Micheels
Thinking of you all and keeping you in our prayers. Sarah and the boys will be coming at the end of June and I will be going back to Richmond with them in July. Hope to see you then. Blessings! Mary Micheel
Just saw a report on our local TV station on CRPS about a doctor in California who has used the Ketamin coma therapy. They interviewed the gal who was “cured”, but not until after undergoing many trials and lots of pain. And so our hope continues that the Lord will grant you relief from your pain. Prayers and Blessings. Mary Micheel
I hope and pray that the docs at MCV are able to treat Kathryn’s staph infection and she will find some respite from her pain. Congrats to you, Kathryn, for being able to focus on your studies and guitar and to accomplish so much while dealing with this miserable illness!! Love to you and your family.
Kathryn and family,
So sorry to hear that you’ve had these additional struggles this past month or so. Kathry, very proud that you got an award at school, especially with the pain that you endure daily….it just reinforces what a strong, vibrant young woman you are! I pray that you will find some relief from the pain, and that you can have a fun, relaxing and enjoyable summer. Keeping you all in my thoughts and prayers.
Hello McDonalds. You continue to be in my thoughts and prayers daily. Asking the Lord to give you all the strength and energy you will need as you go forward with the next step in Kathryn’s treatment. Remember his promise that he will never leave us or forsake us and GOD KEEPS HIS PROMISES. I enjoyed seeing you and visiting with both of you, Dave and Rita and appreciate all you do to help Pastor and Sarah. God’s continued blessings as you move forward. Mary Micheel
Hello. Went to Bible Class tonight. Subject was the Lord’s Prayer, Give us this day our daily bread. A good reminder that this applies to both our physical and spiritual needs. JESUS, THE BREAD FROM HEAVEN, is there to feed our soul every day. The LORD, our god who always keeps his promises, provides what we need at the proper time (Psalm 145:15,16). We should be asking god for contentment and guidance in our daily life, trusting that he will provide us with what is best for us at any given time. He is in control. Take heart in knowing that he knows what we need and will provide. Praying for relief from pain and success of treatment for you, Kathryn. Praying for blessings and the stamina to manage daily challenges for all of you. Mary
_____Great minds think alike Mary 🙂 !!
So fun that you studied the Lord’s Prayer! My thoughts and prayers have been intent on God’s “daily bread” or His daily provision for our needs since receiving the tough news from Anthem several days ago. I began writing the July 31 update days before receiving that blow of bad news, yet I knew that I wanted to reference Matthew 6 and the Lord’s Prayer. It is precious that Jesus’ foreknowledge, His presence and His promises even comfort our thoughts in times when calm thoughts seem like an impossibility!
Your friendship and your encouragement bring me comfort and smiles- THANK YOU SO MUCH FOR YOUR LOVE!! -Rita
We will be thinking of ways to raise funds for this very worthwhile and God pleasing effort. I am sure the Lord will come through in this area as he does take care of our “daily bread”. If there is anything I can do to help, please let me know. Retirement affords me the time to be able to work on things like this…and prayers, prayers, prayers. There can never be too many! We sometimes forget or hesitate to pray when God tells us in Hebrews 4:16 to “come boldly unto the throne of grace, that we may obtain mercy, and find grace to help in time of need.” Thoughts and prayers go with you as you travel to Forida. Blessings to all. Mary
I hope & pray you get lasting relief from ur treatments. U & ur family r always in my prayers. please keep me posted on ur condition & how ur feeling.Hugs & Prayers Mindy Ziemer
You might not remember me, but I stayed at your house a few years ago when the Luther Prep Singers came to your church (2009, I think?) I also came to help with music for your Easter service in 2011. I visited again this weekend and heard about everything that’s going on, and Sarah gave me a link to this blog.
Kathryn, everyone I’ve talked to has just raved about your positive attitude and incredible strength, and it’s obvious they’re right as I’m reading through this blog. I’ll keep you in my prayers, and keep staying strong! You’re my hero!
_____Hi Emily- it is so nice to hear from you- yes I remember your precious self!! Thank you for your prayers!!
love and blessings -Rita MacDonald
Just a quick note to let you know I have been thinking of and praying for you all several times today. You (all of you) are never far from my mind. Keep the faith and know He loves you and continues to hold you in His hands. Blessings. Mary
_____Thank you Mary! We love you! -Rita and the rest
Hope your treatments continue to go well for U. U & UR family r always in my prayers. please keep me posted on ur condition.
_____THANK YOU for your prayers Mindy! I hope that you are still feeling better!! I wish that Kathryn felt up to visiting and that we could come to see you. Keep shining Mindy! We love you -Rita
Hey Rita & Kathryn & Joe,
Just to let You know i’m still enjoying being totally pain free w/ both neurostimulators (Head,Neck) Set @ 20 Each. Please tell kathryn & joe & dave & rita I love them . You guys will always be in my prayers. please keep me posted on kathryn’s condition. I also wish You guys could come visit. Hugs
So glad today went better! Praying for you all!!
______Thank you Debbie! You, Pastor Ronnie, Anna Beth and Aaron are on my heart and in my prayers. -love and hugs, Rita
Praise God that things went better today! Kathryn, you are your own best Warrior! Just one more day. Praying things go well again tomorrow. Love you all. Mary
Hey Joe could you give me a call sometime? I would like to run a fundraising thought past you. Send me an email address and I will email you my phone number. Thanks. Mary
You are each one in our prayers! I hope that this treatment brings much relief! We love you!
_____Thank you Sarah -I am so thankful for you guys!! much love, Rita
Kathryn, You are on my mind so many moments of each day and more importantly in my prayers continually this week, Love to all the family, Kathie Hollon
HI Kathryn and Family! I hope all is well and your treatment works crazy good this time. Can’t wait to see you back at church! God Bless!! Brandy
______Thank you Brandy!! love and blessings -Rita
My name is also Kathryn and I also suffer with CRPS. Your site caught my attention because we both have the same name spelled the same too which in my experiences is rare unless you’re around 60. We both seem to have a lot in common. Ive had CRPS since August 2008. I would love to have someone to talk to who knows what I’m going through because I’ve never met anyone else who suffers from this. I want to start a support group but I’m not sure yet on how to go about it. I feel so alone sometimes even though I have so many people who love and care about me but they just can’t know what it’s really like. I’m just hoping that we can help to encourage each other and swap stories and experiences. I hope to hear from you soon! 🙂
Kathryn,
I’m praying this will the treatment that turns things around and it will last. Very thankful things went easier this time. Prayers for a safe trip home. Mary
Dear Rita,
Have been thinking of Kathryn, hoping and praying that this latest treatment brings relief – permanent relief! Also keeping you & family in my prayers.
With love,
Carol Bradley
______Thank you for your hopes and for your prayers Carol!! -love and blessings, Rita
I am so glad you’re home safely! It sounds like prayers are being answered for Kathryn – time will tell but always remember that God is there no matter the outcome. He will carry you through to the other side! Hugs!
The absence of pain is a most beautiful thing. Those with debilitating pain understand that so well. My prayer for you is that this beautiful thing will be yours. God bless you and give you a special blessing today. Kathie
_____Thank you for your lovely words Kathie. I know that your heart is especially tender to pain because of all that you have been through. I am so thankful for your frequent prayers! -much love, Rita
Glad ur pain is so much lower. Prayers going ur way that ur pain stays lower. U & ur family r always in my thoughts & prayers. Also please tell ur family that I’m still enjoying beening totally pain free. Both Neurosrimulators (head,neck) set @ 20 Each. please keep me posted on ur condition.
______Thank you Mindy. We love to remember you and your family in our prayers. We are so thankful that you remain pain free!! God bless you sweetie!!
Thanking the Lord for your safe return home and a reduction in you pain, Kathryn. Will continue praying for your pain relief. Continued Blessings! Mary
______Thank you for sharing encouragement, love and support dear friend! I wish that you did not know pain so personally but I thank God for your willingness to pray and for your ability to hope and love. You shine! love, Rita
Kathryn, I’m sorry to hear about your pain while exercising. I had a scare a while back and thought I’d have to go through a round of radiofrequency treatments on both hip joints due to extreme pain. A few days later, the pain simply left. Don’t have any medical explanation for it coming or for it going. Just prayed a lot . Will ramp up the prayers for pain relief for you dear, sweet girl. And Rita, a day a time, knowing that there are many people keeping you in their thoughts and prayers every day. God will continue to watch over all of you. Blessings. Mary
Happy to hear you were able to get to church, Kathryn. I am sure there were many people very glad to see you. The prayer list continues to grow daily with more friends and family needing to help of our ever-present, all powerful God. It is good to know that whatever we have to deal with, it is never too much for Him. So, we continue to go to that throne of grace with the request that He will give us strength to endure the trial until we have reach relief. Prayers continue. Mary
I’m vey glad ur pain is much lower & ur need for clinic time is much less & ur need for pain medication is also much lower. U & UR family R Always in my prayers. Will continue to pray daily for U & UR Family. Please keep me posted on ur condition. Hugs & Love,Mindy Ziemer
That was so beautiful, as is she. I am sitting here wiping tears. I know that makes all that hard work worth it for you guys. I think it so amazing when God sends beautiful words of encouragement at just the right time and through just the right person. I am so happy for you guys and pray that God continues to carry you through.
So blessed by these words by Kathryn!! Thanks for bringing tears to my eyes this morning. We love you all and are praying, praying… Love, Shannon, Jimmy, James and Jaeden
Bless the Lord Oh my soul. Bless the Lord Oh my soul and forget not all his benefits. Wow! He keeps His promises! He hears our prayers! He answers our prayers! What a great track record. I guess I will just keep thanking Him and praying that even the little pain relief continues and gets greater. God’e blessings to you all. Mary
Kathryn, hang in there, take a deep breath, sloooow down and listen to that body. We just get so excited when the pain is less that we do too much. I know it took me a few experiences to learn that very hard lesson. I have to sit out that one next activity I really want to go to, see, or participate in. I have to choose between events and try not to hurt someone’s feelings. Lots of people just can’t understand how coming to eat dinner can be exhausting or increase your pain. And, it’s exhausting to keep trying to explain. Remember that whatever you are doing, it’s your second job. Job one is your constant battle to manage the CRPS.. You are incredible to have accomplished what you have so far and our prayers include asking That God continue to give you the strength to fight this battle. Like Aaron did for Moses, your English assignment reflects that your Mom, Dad, and brother are holding up your hands through the battle. The Lord placed you with a wonderful, loving family to accomplish this. Prayers and blessings. Mary
I’m very pleased w/ it improvements ur treatments have made & am glad of the reduction in pain. U & UR family R always in my prayers. I’m still continuing to be totally pain free. Both Neurostimulators R Set @ 20 Each.(Had,Neck). please keep in ur prayers.
Hugs & prayers,
Mindy Ziemer
Thanks for the update. How do we purchase the bracelet? We eill be in Virginia at the end of this month and hope to see you at church. This trip is to be just a vacation vacation….get to see the sights and play. Can’t wait to see the kids. Happy to hear Kathryn has been able to get out of the house. Prayers continue. mary
Rita, I went to the pain clinic today for prescription refills. The PA i see said they see a number of patients with CRPS. She gave me a booklet and CD for you which I will bring along on the 24th. You and Kathryn may already be familiar with this info, but she said they have had success with this treatment. Glad to hear that Kathryn can still get around. Sorry to hear that the pain is still there. I will be going for a replacement for my defibrillator. I beep every morning at 10:00am on the dot! Just like the smoke alarm when the battery needs changing. The Cardio nurse thinks the device may be defective because I haven’t had it that long. It may be ubder warrany so….more paperwork to fill out. I’m gonna ask the doc if he can just put in a zipper this time instead of stitches in case we have to do this again. Prayers keep going for all of you. Keep laughing, smiling and loving those around you. Mary
Rita, you are in my prayers every day, as is Kathryn. I will add Apryl to the list. Be assured that the Lord is there for you and will keep you strong as he has so far. GO TO HIM AS OFTEN AS YOU NEED TO AND BE BOLD IN ASKING FOR HELP! He himself has commanded us to do so. He loves you. He loves Kathryn. He has promised you the gift of eternal life through his son, Jesus Christ. He keeps his promises. Let me know if there is anything I can do. Mary
Hi Rita & Kathryn,
I have a friend at church who would like to make a small donation to help with K’s treatments. Who should she make her check out to?
Barbara
Hello to all of you. It was wonderful to see you at church a couple of weeks ago. We had a great time with Mike, Sarah, and the boys. Isn’t it great when you like your grown-up kids? Thanks be to God for his guidance and care as they were growing up. I know how proud you are of both your kids. Kathryn you looked great. Thanks for hanging in there. You continue to make many people happy. Prayers continue daily that your pain will decrease. Take care and remember that your Savior is with you at all times and loves you soooo much. Mary
Rita, Kathryn and all, just letting you know you are always in my prayers and not a day goes by without request to ease your pain, both physical and other. Needed the reminder asked by Pastor White, “What is there here on earth that is better than the promise God gives of what heaven will be like?” No more pain, no sadness, He will wipe away all tears…
Just the absence of the ravages of sin will be such a glorius relief for so many. And to think, that is just the beginning of what He has in store for us…Keep the faith. Hold each tightly. Continue to support one another. Don’t ever hesitate to ask for more support from anyone. Remember how much you are loved by so many. Continued prayers and blessings. Mary
Good to hear that Kathryn is pushing on. Will pray that someone near you will be willing to do the treatment. Will also pray for Apryl…that God will grant her some peace as she struggles through this difficult time. Please pray for my Caleb and his Mom, Sarah. She told me this morning that he has RSV again. These are the times I really hate being so far away. And after the terrible news of the day, I really want nothing more than to just hold those babies close and not let them go! You hold that prescious Kathryn close. I truly hope those 20 little children in Conn. knew Jesus and will be spending Christmas in His heavenly choir. A blessed and love-filled Christmas to you all. Mary
FROM RITA—YOU ARE AN AMAZING BLESSING MARY!! I’M PRAYING FOR SARAH AND CALEB- WE ARE SO THANKFUL TO HAVE YOUR PRECIOUS FAMILY HERE WITH US AND THEY ARE IN OUR PRAYERS DAILY! MAY “THIS THING THAT HAS HAPPENED” (luke 2:15) BE FRESH AND VIVID TO YOU THIS CHRISTMAS!! MERRY CHRISTMAS- I LOVE YOU.
We went to the Jesus Cares Christmas Service this afternoon. I have not been to one since I workrd there 7 yrs. ago. I still knew most of the students and some remembered me. The joy they have sharing their faith in word and music is just as exciting as it was years ago. Kathryn, can you picture 15 adults with disabilities playing Away In A Manager and Silent Night with tone bars? They are so proud. They know why that Christchild came for all of us. They know they are sinners needing forgiveness. And, they know they have a God who loves them so much that he gave his one and only son to take their place. They know that they are just like you and me, forgiven sinners who will spend eternity in heaven with that loving god. Lots of smiles, hugs and kisses exchanged today with a group of people we have brought to Jesus.It was a good day. Merry Christmas to some very dear christian friends. Virgil and Mary
Happy and Blessed New Year for the MacDonald household from the Micheels. We pray that our good and gracious God will continue to guide and uphold us as we venture into another year. Thankfully we know that he is a God who keeps his promises. He listens to our prayers and is there whenever we call on him. We think of you often and continue to include you in our prayers. Always happy to see you when we come to visit. Take care. Love, Mary
Running out the door to do some shopping for work, but wanted to send a quick note. I’m so sorry to hear that the lovely young lady who played so beautifully for us a short time ago is now in such distress. Please know you are surrounded by our thoughts & prayers immediately. Much love, Barbara
What a wonderful letter from your friend , Francine. She certainly captured what many of us have not been able to put into words. Her understanding of the need for prayer for Kathryn from all of us is so right on And, the rest of you special Macdonalds and the way you have supported her through this ordeal is remarkable. I look forward to seeing you in March when we will be in Richmond, so I can give you a real hug, Rita. Lord’s blessings to you all. Mary
Hang in there! I know you are a strong young lady who can not only endure this, but who can also reach out to others and be a source of knowledge and encouragment to others. I look forward to seeing your smile the next time I see you in the halls at Manchester.
I am so sorry to hear that things have been so incredibly difficult these last several weeks. I had hoped for some relief for you all. My heart is breaking. Please know you are in my prayers… We love y’all!
I am so sorry you are again suffering so. I truly know how terrible the unbearable pain is. So we will go to that throne and pray boldly that the lord gives you some relief and gives the doctors an extra measure of wisdom as theyy proceed with their plan. If love were able to erase the pain, Kathryn, it would be gone. So many people love you so very much and many hearts are hurting with you. Prayers and blessings to all. Mary
Dear Friends. Today in Bible Class, the pastor focused on reminding all of us to go boldly to the lord in prayer because just as our earthly fathers take care of us and listen to us, so God will listen to our prayers. And he will answer our prayers. When asking for spiritual blessings, the answer will always be yes. When asking for earthly things, the answer will be yes, no, or maybe…or maybe not now, but in any case he hears and gives us what he deems best at the time. I have had a difficult time this week dealing with KATHRYN’S situation. I know that he knows what he wants to accomplish, but it really struck me hard to see why this is happening. All those prayers, and still the pain. I do know that it is important to pray that the Lord keeps Kathryn’s faith strong, and he has done so. I will continue to pray for this and will increase the prayers for a reduction in pain. Part of the frustration is in not being able to do anything concrete. I’m sure you feel that frustration all the time. Rita and Dave, be sure to take care of each other. Know that prayers go out for you also. We will see you in a few weeks. Blessings and Prayers. Mary
Dear Mary, your honest sharing is always a wonderful encouragement that I am so thankful for. Your encouragement and prayer for us is such a gift- thank you so much!!
I spent time with the same topic recently and it gave me similar pause as well. But I realize that we are in good company with so many other sufferers that God loves.
God answers all the prayers offered for Kathryn in that God constantly makes His help evident and then He does the work in our hearts and minds that brings peace concerning suffering.
I love remembering the question John the Baptist asks Jesus from prison. The response that Jesus gave John leaves us knowing that Jesus is THE Savior and so has the power to heal Kathryn AND that He also has the almighty wisdom to know when to heal her. Matthew 11
Even so, I cling to His instruction to ask for anything in His name and His reassurance that our joy will be the fullest possible! John 16:24
Your love and prayers for Kathryn blow us away and leave us so grateful!! Love and hugs- see ya soon 🙂
Today Pastor talked about our inability to comprehend God’s love for us. Isn’t it wonderful to be stumped by somethig so wonderful for a change? To know he’s with us at all times, cares for us at all times, loves us at all times, forgives us at all times. I know that I’m not capable of doing any of those things all of the time. It was nice to take communion after the wonderful realization that my God does not expect that of me and that he has provided salvation for all who believe. What wonderful words, “My grace is sufficient for thee.” Hope that things are going a little better for you all. Prayers continue. Love and Blessings! Mary
Thought of all of you today as I was at the pain clinic to get my prescriptions renewed. I am so very fortunate and thankful that the medication still works most of the time. I continue to pray that Kathryn will have some relief as you progress with her new treatment plan. We need to rely on God’s promises as we know that he keeps them all. We know he has a purpose for ordering our lives the way he does, even though we often can’t see it. Take care. Prayers and Blessings to all. Mary
Our prayers will most definitely be covering Kathryn over the next seven weeks. God promises in Deuteronomy 31 that “He Himself goes before you and will be with you; He will never leave you nor forsake you.” In our church last week, we saw an outright absolute miracle from God so we know He is still on His throne. I am praying for God to steal the show again with Kathryn. We love you all!
It was wonderful to see you, Rita and Dave. The Lord surely holds that wonderful child in His Hands! She has accomplished so much with the medication! I know how difficult it can be and I,m rooting for her each and every day. Will continue the prayers for the Lord to keep her safe and give her the strength to make these weeks fly by for all of you. Thinking of you all and sending my love. Mary
Hello Dear Friends. I went shopping this morning and had the radio on. The song “Blessings” by Laura Story came on. I immediately thought of you, especially Kathryn. Couldn’t get it out of my head so looked it up on Youtube when I got home. It is so touching. The words “remember our home is not here”. Easter is our reminder of what awaits all of those who believe, all who have been given the wonderful gift of god’s grace. Free to us from a loving god! Today we remember our Lord’s last night with his disciples. The pain and suffering he endured for us in the garden and on the cross to defeat Satan…and his glorious resurrection. All to let us know what awaits each of us. It was a good day to also watch the video “Who Am I” by Casting Crows (w/lyrics). This lets us know very clearly who is responsible for our salvation. A Blessed Easter to you all! Mary
A Blessed Easter to all! After arriving at church at 6:00am to stir the hot milk for our five Nesco roasters full of bacon and eggs, going to 2 church services with the Easter breakfst sandwiched in between, running home, changing clothes, eating a bite, and runnuing downtown to the Milwaukee Repretoire Theatre for a musical show, I’m pooped. Happy to just relax tonight. Had several times to think of you and remember you all in special prayers. Kathryn, I pray that the Lord will support you through the next few weeks to effect your change in treatment. You are so fortunate to have such wonderful people who are supporting you. And, you have many others of us you don’t even know who care deeply and keep you in our prayers. Again, a Blessed Easter to all. Mary
Kathryn, Thanks so much for the update.
God Bless you, beautiful girl! Your courage is a wonderful example of how God wants us to live our lives everyday. I went to see the pain doctor the other day and gave her an update oon your status. She said she is so proud of you…that it takes incredible strength to do what you are doing. You are so very right about being thankful for what we have been given. And we have so much to look forward to. Hello to Rita and Dave. What a kid you have there…(make you a little bit proud?) Will be praying for continueed strength for all. Blessings! Mary
Thinking and praying for you all! Hope Kathryn is tolerating the treatment OK. You are all close to the heart. Mary
WE LOVE YOU MARY!!! Your prayers and comments are such a wonderful reminder of God’s love and help! I also like the songs you mentioned earlier. We pray for you and are so thankful for your encouragement!!
-Rita
How is that sweet girl doing? I keep praying for all of you. And as so much evil keeps revealing itself in horrendous ways, we hold steadfast in the love of the Lord who has done it all for us. Heaven is looking better and better every day.
Keep the faith and don’t hesitate to call on Him for anything! That’s what he encourages us to do.Love and prayers. Mary
Sarah tells me you are beginning the great new adventure. I have been praying all day and will continue to do so. I would love to be there to give hugs and hold hands, but will keep you all in my prayers. God be with you and bless the efforts of all the medical people working with Kathryn. May he give you a large measure of strength as you work your way through this step of the journey. Thinking and praying continually, Mary.
HAPPY BIRTHDAY TO YOU!! HAPPY BIRTHDAY TO YOU!! HAPPY BIRTHDAY DEAR KATHRYN!! HAPPY BIRTHDAY TO YOU!! AND WE LOVE YOU SOOOOOOOOO………
Hey baby girl – how’s stuff? I just wanted you to know how much we love you and are thinking about you. YOU are a part of our family and we all miss you and love you. I’m sending prayers your way. I’m also praying for your amazing physicians to have God’s grace touch them so they can transfer his healing hands to YOU!!!! You are an amazing young woman. I know it’s in God’s plan to have you healed and feeling well in no time. You have so much to accomplish yet.
Sammie is signing up to take her College SATs. She is also signing up for Behind-the-Wheel. So maybe when you get back, she will have completed it and can get her license. What am I saying??!!! No really, I want her to be able to drive (I think) and when you get back you can ride with her. Everything will work out. Why you ask? BECAUSE I SAID SO!!!!! All your brothers here are sending you their best wishes and funniest thoughts. (think Corey and Josh=CRAZY) We will be your long distance cheering section — GO KATHRYN!!! YOU CAN DO IT KATHRYN!!! WE LOVE YOU KATHRYN!!!! OH AND GET IT RIGHT DOCTORS!!! WE WANT HER HOME SOON AND STRONG AND HEALTHY.
Rita – Thank you for providing this link. I’m so thankful to be able to keep up with you guys. I know you know how much your daughter means to mine and to all of us here . We love her alot and are sending nothing but good thoughts and prayers your way. Please let me know if there is anything we can do for you.
Happy Birthday Kathryn! Kind of a weird way to spend a 16th Birthday but hey your on your way to good health and lesser pain. Apryl and I and our whole family are praying for you. Apryl is at Cleveland Clinic right now doing physical rehab. She is being given a small dose of oral Ketomine to be able to get through the intense therapy.She ia also gaining strength and feeling better. So when you and Apryl both get well we should take a dream mother-daughter vacation!!!! All our prayers and good vibes are being sent your way! Love,Toni and Apryl Levy
What a marvelous precious birthday gift from The King to one of His sweet little princesses! Praying for all of the family that the pain will be down to zero when you leave. We have been praying and lifting you before the throne all week. Can’t wait to hear the amazing journey!
Linda Cheeley
Praise God from whom all blessings flow! I am so happy to see Kathryn’s pain is decreasing! I will continue to pray that the Lord continue to bless everyone working with Kathryn’s treatment. Blessings to all! Mary
Isn’t it wonderful to know He hears and answers our prayers? I am so happy for Kathryn and the rest of you!! Will keep the prayers going and make sure we give Him the glory. Love to you all! Mary
What an absolutely AMAZING God who loves us so intensely! We are continuing to lift you before the throne and we will continue to give God all of the praise and glory. His love and mercy and grace never cease to blow me away! It is such a pleasure to rejoice with you over this.
This was amazing news to return to after being away on vacation – I know, we were vacationing (family visit to Memphis to see Christine) while you all fought this valiant battle. So glad to hear that many made Kathryn’s 16th so special & that she is a 3! REALLY? A THREE? How cool is that! Prayer, modern medicine, support from friends & family – it all plays a part, eh? Love to all, Barbara
So happy that the CRPS pain is gone! I am feeling wonderful for you, Rita. You have worked so hard, all of you, to get here. Enjoy this time. We will all continue the prayers. It was great to wake up this morning paising God for this wonderful blessing. Told people at church who have been praying and they were also so excited to hear Kathryn is pain free. Pastor’s wife said, ” What a wonderful Birthday present!” What a a faithful God! Take care. Mary
Rita, I am so happy for you and Dave! You have done a wonderful job getting through the past 5 years. Rita, you kept going when you were too tired to go on, kept fighting when things looked too difficult to fight for, found answers when it seemed there were none left, kept paying when others would have given up. You have been a terrific example of a Christian woman for many of us. Jesus expects us to be an example to others…to let your light shine. Lady you just glow! HUGS!! Blessings and prayers! (have Kathryn and Dave give you the hugs I’m sending you) Mary
Thought of all of you when we read the Second Lesson (Romans 5:1-5 NIV) in church this morning. Especially, “And we rejoice in the hope of the glory of God. Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perserverance, character, and character, hope. And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us.” All of you can certainly be described as persistent, having wonderful christian character and great hope. This suffering you have undergone has shaped you and formed you into what God wants his children to be. Praise the Lord! He has continued and will continue to bless your beautiful family. Blessings and prayers. Mary
Hei Kathryn!
I do not speak English very well, because I’m from Finland, so apologize for any spelling errors.
I was happy when I found this blog. My sister was also CRPS. My sister is only 14 years old. He developed CRPS, when he fell on his hand. Just like CRPS were not enough awkward, my sister lost her sight a year ago. Even though my sister is sick and blind, he knows how to enjoy life. The writings of you know how to enjoy life. I wish you strength and all the best. You know this for sure myself, but it’s never going to give up.
CRPS is never easy and it may never get better, but with it you can learn how to live. It is encouraging to read your posts, as you know, you’re talking about. I really hope for you that you keep going to fight against pain and trying to live a normal life as far as possible. some people see only the disease, but too small percentage of people will see all that is good. Enjoy your life!
Oops! Became a long post, sorry. Greetings from Finland!
Happy to hear that the pain relief continues. Prayers also continue. I guess we need to let Maria from Finland know about the joys that Jesus has brought to Kathryn’s life. I hope she reads Mike’s sermon(s) and the Holy Spirit uses this as a means to help her sister. We, the WELS, do work with folks in Scandinavia and I’m sure there is someone there who could work with her. I’ll certainly include them in my prayers. Think of you all daily and continue to ask for God’s Blessings. Mary
Sounds like the ordinary “little” things the rest of us don’t think much about will continue to bother Kathryn. But, it’s wonderful to see that she responded to some “regular” treatment. Rita, I learned last weekend at our eigth grade reunion for Madison Lutheran School that my best friend lives outside of Richmond and runs a religious retreat called Stillwaters. She has been a chaplain in almost all the hospitals and some hospices in Richmond. Her name is Ann Hogan and I will be keeping in touch with her from now on. The Lord works in mysterious ways! About 12 out of 31 of us made it to the reunion and we all agreed that those years were extremely valuable in shaping each of us. Getting a base in God’s word, memorizing both scripture and hymns were not work, but a worthwhile part of our education. Hopefully, I will be able to introduce her to you the next time I come out. Prayers continue for sweet Kathryn and all of you daily.
Mary
Hi Kathryn! Your mom left a sweet message on my blog, and gave me your website, so I wanted to say hello 🙂 what a small world that you guys are friends with our cousins, the Caparelli’s!
I just briefly skimmed through your blog and it seems we have traveled down some similar paths and symptoms. I really hope your ketamine booster this week helped to alleviate your pain, if not, I always find a multi-day booster series helps a lot 🙂
RSD is a horrible disease, and it is bigger than you, me, our families and our doctors… but it is not bigger than God! He is faithful, even when we feel like we’ve fallen too far for Him to catch us… He somehow always does.
If you ever need someone to talk to who ‘gets it’, don’t hesitate to email me- hopeforjessica7@gmail.com
I am praying for days with less pain for you, and a cure to this monster of a disease for us all ❤
Could not help thinking of you all on Sunday during the sermon. The text was: Genesis 18:20-32. Theme was “Pray like Abraham: Humbly, Persistently, Knowingly. It certainly reminded me of how we have been and will continue to pray for Kathryn. How is her pain level? Is there anything new or special we should be taking to the Lord in our prayers? We wish you all well Blessings. Mary
Hi Kathryn. I hope you are feeling as well as can be! We are a group of 3rd year medical students in the UK who are doing a research project on CRPS/RDS. We’ve just been reading your story and learning alot, thank you! We have to present our poster on the topic to the rest of our university (University of Bristol) in a couple of weeks and we really want to make the illness better known. We were wondering how we could get hold of the RDS bands that you feature on your blog? Are they produced by yourself?
My email is jd_1991_@hotmail.com
It would be so helpful if we could get some bands, other students and professors would defintiely be mpre attracted to our poster if it was slightly more interactive!
Thanks alot.
Regards
Jess
Hello to the wonderful MacDonalds. I had such a terrific visit with you a couple of weeks ago. I continue the prayers for pain relief, trusting that the Lord will continue to be with Kathryn, his dear child. And prayers also go out for you, Rita and Dave that he continues to give you strength as you travel this difficult road. Blessings to all. Use Still Waters as a place of peace. Ann will be happy to provide you a sanctuary. Mary.
A few thoughts from our bulletin today…Genesis32:22-30 Jacob’s wrestling with God at Peniel is an excellent example of how the Christian may be bold in his prayer life. Psalm 121 The Lord’s eyes are always upon us and His hand always beneath us. We can always look to Him for help in time of need. Luke 18:1-8a Christ’s parable of the persistent widow encourages us to never tire of bringing our prayers to the Lord’s throne of grace.
Encouragement to keep those prayers coming, remembering nothing is too much to ask for with a God who is ever-present with us. Prayers and Blessings to you all. Mary
It was so wonderful to see Kathryn when I was there! Kathryn, you are truly a beauty, both inside and outside. May the Lord continue to give you strength as you battle this awful enemy. Our prayers will continue, requesting that the treatments provide you the pain relief to continue through the rest of the school year. Rita and Dave, prayers that He continues to also give you strength in double measure as the battle continues. Think of you daily. Love and Blessings to all. Mary
Thank you so much Mary! We are so thankful for your prayers, friendship and encouragement. You know pain personally, yet you keep finding much humor and joy in life. We admire you as you fight the good fight to let Christ’s light shine through you!! Keep shining sweet friend!!!
Hi Kathryn, Its your school counselor. I am sorry I did not see you before your departure, but know that you have been in my thoughts and prayers. Hold tight to your faith and know that there is relief coming soon. Big Hugs to you and your family and we look forward to seeing a healthier you at school soon. With Love . Carol Simpson-Woodley
praying for strength for you Kathryn as you endure these treatments to get a level of comfort we all take for granted. You have the gift of an amazing family to help you through this. May you get lots of rest and comfort as you do what must be done, Speedy week for you.
KATHRYN I know you dont know me but I grew up with your mom ( Suzanne Harmeling ) .We were best friends and almost relatives ( I dated your U.Micheal for a time) I have prayed ferfintly for Gods will to be done in your life as well as your families .My hope is that you do make a recovery and that you grow in the grace and knowledge of our Lord Jesus Christ.Your U.Paul was a wonderful man .He surely is gracing heaven with his music even as I type.
May God bless and keep you and your family close by his side.
Just wanted to let you know that I continue keeping you and your family in my thoughts and prayers. Kathryn, I can’t pretend to know the daily struggles you have due to CRPS, but I hope and pray that God will lift you up and bring comfort to you and your family. Rita, so sorry to hear about your brother’s sudden death. May your faith continue to bring you peace in your times of sadness. XOXO
Continuing to pray for Kathryn and family. I’m so sorry for all the struggles connected with this horrible sickness. Will especially pray for extra strength in the coming days. Much love to you…
Continued prayers that you remain strong as He holds you in His hands. Sarah said it was wonderful to see you helping at the Easter Egg Hunt at Living Hope. Love to you all. Know you are in my thoughts and prayers daily. Mary
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Still thinking of all of you. Rita, you go girl! I think the changes you have made in the area of the mold are great can’t wait until Mike and Sarah get their upstairs bedroom floors done. I’m sure the boys will breathe much better. Dave, I’m sure you’re tired, but it must be great to know the work is bringing about great results. Kathryn, it’s so wonderful to hear things are going better! Praise the Lord, for he is good!! You have been given wonderful, faithful parents, with their hearts and heads in the right place. Give them hugs from the Micheels. God’s grace be with all of you as you continue in the battle. Love and Blessing, Mary
Kathryn, what a beautiful woman you have become, both inside and out. You are my hero! I am truly inspired by you and I use your courage often as an example with James when he is complaining about something he shouldn’t be. (I need that example too!) Thank you for sticking in there and showing us how good God is and how wonderful your family is. We pray for you daily. God bless you! Shannon, J & J
I’m totally pain free with 1 working shunt the right shunt is working properly. All of this was done by Dr Fraser Neurosurgeon here in Lexington Ky & Lindsey Parker Physician Assistant I hope all of u guys like this wonderful news about myself.
Thinking of you, Kathryn, as you once again go through this difficult treatment. Prayers that the Lord blesses these efforts and gives you relief. You looked so wonderful when we got to see you . You do truly show others a wonderful example of a fine young Christian woman who acts out the type of life our savior wants all of us to do. Blessings to you and your family. You all are in our thoughts and prayers daily. Mary
I’ve been thinking of all of you much lately, accompanied with lots of prayers. Know that that tiny babe born in the manager came to this earth as a human to fulfill the promise His father made to us. He came to be a true man to experience all the pain and agony we humans do, to truly become our brother and know what we feel…so, just as we are in pain, he knew that pain and was willing to complete the task he was sent to complete. How much love did he show us? A great deal of a deep, caring love like no other. He will continue to keep us and sustain us through this life until he takes us to be with him in a place far better than anything we can imagine. God Bless you and keep you in the New Year, faithful friends. Love and prayers, Mary.
Prayers, Prayers, Prayers! Kathryn, my heart goes out to you. The Lord of all fold you in his arms and ease your pain, give you strength once again as you continue this battle. Thinking of you everyday and continuing to pray. Love, Mary
Continuing prayers for Kathryn and you Rita. Just read your update. Can’t imagine what you all are going through. So grateful to know God is with you in every step of this difficult journey. Love you much…
Oh give thanks unto the Lord for he is good and his mercy endures forever! Happy to hear Kathryn is feeling better. I know how difficult the system makes everything, but God gave you all the strength to get through it once again. May his blessings continue to surround you. Love and prayers! Mary
Thanks be to God! I am so happy to hear that Kathryn is doing well. God does indeed keep his promises. Prayers continue for all of you. Enjoy this time and we will pray that the Lord will extend this period of relief for a longer time.
We hope to come out in May and look forward to seeing you all. Blessings . Mary
Thinking and praying for you Kathryn and Rita. I am amazed and lifted by you and your family’s steadfast faith. Congratulations on making it safely through another grueling Ketamine treatment and also for your recent college acceptance!! May God continue to give you strength and comfort. Love, Kappie
Rita, what a blessing to have such a beautiful, young woman as your daughter. The Lord has shown you and Dave the right way to bring up this brave young woman. Prayers continue for all of you. I know how terribly hard it is for Kathryn to carry this burden. At this time of the year she must have a much better understanding of the agony her Savior had while in the Garden as He prayed, “If it be Your will, take this cup from me.” And, she is using her burden to work for good, rather than being bitter and angry. I have been sick for the last eight weeks and just starting to feel better. I cannot imagine the pain our Lord suffered when taking on the punishment for the sins of the world, But, I believe we can appreciate the agony He suffered in a way that others may not. But, thanks be to God for giving us that Savior to allow us to freely spend eternity with Him. Kathryn’s gift of music will surely be welcome there. Easter Blessings to the MacDonalds. Mary
If Kathren’s mother would please email me, i have a 23 year old granddaughter with CRPS. My daughter would like to ask you some questions by email. If you would email me, please, i can give you her personal information. I promise you she would not bug you. She is also a Christian and would like to be in contact with another Christian. Vkmccauley@gmail.com. thank you.
Rita and Kathryn,
My thoughts and prayers are with you always. The Lord has blessed you both with wonderful gifts, among which are amazing strength and courage. Your faith shines through in all you do and both of you give so much to those around you. I pray that He continues to hold you in His hands, blesses you with His Spirit, and gives you that Peace that passes all understanding. Love, Blessings, and Prayers to you all. Mary
I am so sorry Kathryn was unable to participate in the study. I will continue to pray that the Lord will make the Dec./Jan. participation possible. Kathryn you are amazing and blessed with the courage and strength that most of us will never have during our earthly lives. May God give you all you need to endure until hopefully soon you will be free from all the pain and trials you have experienced. Rita, you are an amazing mom and a wonderful friend!
If Rita can contact me privately, i would greatly appreciate it. My granddaughter has CRPS, also. It would be such a blessing to be able to correspond with another Christian family going through this. Vkmccauley@gmail.com.
Thank uou
Hello to all you wonderful MacDonalds. Love, Prayers, and Grace beyond all measure to you all, and especially to you, sweet Kathryn. I certainly can identify with the pain and I wish I could take some from you to ease yours right now. Please flood that girl’s system with tea…hot, cold, sweet, any way you can to help reduce the inflammation that must be raging through her body right now. I am trying to do the same thing right now after my radio frequency treatments and it seems to be helping a little. Lots of sleep and sweet Jesus songs seem to help too. Thinking of you always. Mary
Kathryn, I will be praying fervently for you over these next several days as you receive these IV treatments. Praying for your strength also as you and the different family members make the trips back and forth. Love to you, Kathie Hollon
Kathryn, Thanks for putting yourself out there for the new trials for this medication.I pray for no less than a Christmas Miracle for you,Apryl and all CRPS sufferers. We absolutely need to keep the hope.God Bless Kiddo 🙂
Praying for more days with increased hours of <6 pain numbers…..hoping against hope in this season of hope, peace, love & joy for the Christmas Miracle above! Barbara
So happy and thankful to see the progress for Kathrynn! We are hoping to see you soon-only 2 weeks and we can praise the Lord together. Hoping to see you all at Living Hope as we prepare for that glorious day of resurrection.
Love to all you wonderful people! Virg n’ Mary
It was wonderful to see all of you last week. I am happy to hear Kathryn’s pain came down and seems to be under control with her meds. Praying that it will continue. Love you all! Mary
Thanks be to God who giveth us the victory through Jesus Christ! So wonderful to hear this great news for all of you. How wonderful to once again know we have a God who keeps is promises to protect us until we will join Him in eternity. Prayers of thanks and for continued success in pain reduction. Love to all. Mary
“Blessed are they who hear the Word of God and keep it.” Kathryn, you are truly blessed to be the type of warrior God expects all of us to be. Speaking Truth in Love rather than words of frustration brings about the understanding we seek and will be especially effective when sharing His message of Grace. Your maturity is evident in your response in a frequently encountered situation for people with chronic pain. Your Mom and Dad have another thing to be proud of you for! Love and Prayers for continued Blessings! Mary
Is there a way to just see the blogs about how you are dealing with air quality? I searched that term and nothing came up. I have CRPS (type 1) and was diagnosed 3 years ago. I also blog but not often. mellissa-rose.blogspot.com
Dear Mellissa,
This is Rita MacDonald, Kathryn’s mom. I am so sorry that I haven’t checked this site for messages in so long. And mostly I am so sorry that you are dealing with CRPS!!
Yes, for Kathryn mold remediation mattered greatly to energy, and function. Lessening mold in her environment helped a little with pain but the biggest pain relief came from Neridronate. I’ve read your site and as you know, Neridronate is not available yet in the US outside of a study. Our miracle happened a year ago when Kathryn got into a Neridronate study and got the actual drug not a placebo. Without Neridronate taking down the CRPS pain, she would be too sick with pain to do all the other work we’ve done this year and to have the success she’s had this year.
Reading your site it looks like you know that CRPS probably starts in most people due to an autoimmune body, a body that inappropriately responds to irritants like mold, bacteria from ticks, certain foods, drugs etc. Doctors advised that the first irritant we lessen in Kathryn’s environment was mold. The difference was remarkable, I got a piece of my daughter back when we mold remediated but with an autoimmune body there is so much more to do.
During the last 6 months Kathryn has started supplements (with Dr. Gordon Crozier,FL) that help her body respond to irritants more appropriately, and she is working hard under a local docs care isolating foods that may matter to her health (sounds like you have already done that work). Also during the last year Kathryn responded well to a device called Quell and to Electromagnetic Pulse Therapy. Also, before Neridronate and all the treatments I just mentioned she was never able to EXERCISE consistently. And we all know that exercise can be a nightmare, treatment and cure for CRPS (I like your yoga bands!)
Know that now that I have seen your message I am praying for you in trust to continue to find answers! with love and blessings, Rita.
Dear MacDonalds,
It has been a while since I have written. I just went to both the Nephrologist and my new PCP. My kidney function has returned to what it was when I was hospitalized. Have to drink more and had a few med changes. I will see them both in 2mos. I have an EGD scheduled for April 12, a week before we come to Virginia. No answers for the gagging, no appetite, weight loss. My red cell count is low so I have very little energy. Rita, I told my PCP that I use the BREATHE and it works well for my breathing. He said it is time for there to be studies done around use of essential oils…I am giving him the link for Kathryn’s Pages as he wanted more info on Kathryn’s story. A little good coming out of misery? One more MD who is open to new information! I will see you all in a few wks. and am looking forward to it. Prayers continue that you keep finding more things to help Kathryn as she warriors on. Blessings to you all. Love, Mary
Kathryn, Rita, and Dave,
Thank you so much for the wonderful visit and words of wisdom. I now have an appointment with the head of Integrative Medicine for Aurora Heath Care. Not until June 26th, but she only consults now and my PCP is also on board. My new room is a work in progress…have a new bed, fan is in operation 24/7, everything has been wiped off or washed in special allergen killing products, carpet has been treated, men coming Sat. to look at the basement and give a quote to remove stuff and possibly do mold remediation. I have thrown up a few times since coming home and the weakness is back with a vengeance. Will keep working on things, thanks to your encouragement. Kathryn, you are a gem. Love, Mary
Dear Mary, YOU GO GIRL -THE FIGHT IS ON! I’m so thankful to hear about all that you are doing and we pray for quick progress and relief for your symptoms!!
My next thought is frustration that, like Kathryn, you weren’t guided early on by your doctors to consider your autoimmune body’s response to household mold as a probable culprit to your symptoms, Grrrrr!! Well we are going to tell others what we’ve learned as God enables us. And we’ll continue to pray that many more American clinicians train toward an Integrative approach to medicine. You’re on my heart sweet lady. ~Rita
I am wonder how she is doing lately. I am headed to Italy for the treatment as I am in the early stages of the disease and am hoping to stop it in it’s tracks. Thank you for this blog it is helpful . My biggest question is any long term side effects from the medication ?
Blessings on you .
Hi Cathy, apologies for delayed response! We check this site so rarely, Kathryn is doing better and we’re so very thankful!
Did you get a Neridronate treatment yet? How are you doing?
Yes Neridronate played a sizable part in helping Kathryn. Originally Neridronate lowered her pain from a 8-9 to 3-4. That didn’t last too long and now her numbers typically float between 5 and 7. Kathryn says for her, Neridronate’s best gift is less spikes in pain.
The treatments that we last listed on this blog are still a vital part of her improvement. In Kathryn, without those treatments, the improvement we got from the Neridronate would not hold.
So each of these are also vital to her improvement:
Quell device
CBD oil (recent and very effective addition)
Elimination diet
Eating foods according to information gained from elimination diet
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We’d love to hear from you – leave us a comment or message below!
Kathryn's Pages
Thoughts, prayers and HUGS coming your way for a safe and successful journey to Florida.
We love you so much K!! We are so totally with you in heart! You are the most amazing and storgest person I know,! I wish you all a very safe, and uneventful journey to FL and back. Can’t wait to see you and celebrate with you when you return. And looking forward to a whole new chapter in your life! Love you lots and lots missy!! Aunty J
Dave, Rita, and Kathryn
Kathryn, we wish you the best in your treatment process in Florida.
Jeanne and I will have you in our prayers.
Cousin
Dan Collins
Port Huron, MI
We love you Kit Kat – and agree wholeheartedly about music. I’ve never had a favorite genre because I need different sounds when I’m in different moods.
Cheeto wishes he could be with you to cuddle when you need it. I’m sure Mom and Dad will do their best — though they aren’t as soft and fuzzy 🙂 !
Ralph and Sue praying for you from Nashville,TN
Hi McDonalds,
Been thinking and praying for you every day.Sarah gave me the info to get in touch tonight. I listen alot to K-LOVE and know what you mean about the music. I too choose to be uplifted and reminded of the promises and faithfulness of our good and gracious God. May he keep you all in his hands as you go through this part of your journrey. Blessings and comfort to you all. Mary Micheel from Milwaukee
Dear Kathryn,
I pray for you, your family and your doctors regularly. I know your CRPS is a challenge but God will get you through it each and every day. I can’t begin to tell you how proud I am of the courage and strength you role model for us all. You are a special young lady and watching you grow up has been a real blessing.
I’m so glad you have this website so we can stay in touch. Look for the positives in each day and remember all of us who are members of your fan club. Don’t hesitate to ask for our help cause that’s what we are here for.
In His Grace, Craig
Thanks for sharing your story! Praying for you!
This is an impressive website. Thanks for sharing it. You are in my thoughts and prayers.
Kathryn,
Greetings from Charlottesville! I continue to marvel at how you and your family have faced this enormous challenge. I interact frequently with people who experience chronic pain and you are at the top of my list of people who have dealt with pain in as healthy as was as seems possible. May God continue to bless you and give you the strength to carry on. I will be praying for you intensely over the next few weeks as you head to Florida. I (we) hope to see you for Joe’s graduation. Love you!!!
Aunt Judy
Hi Kathryn,
I loved working with you. You are so fun to teach. I appreciate you sharing with me some of what you are going through. I will pray for you. I hope you are able to get some relief in Florida. Maybe even enjoy the warmth. Thank you for being such a cool person to work with.
Octavia
Hey Kathryn and Family,
I am still in shock to hear this…remembering now back to 5th grade and what must have been the beginning of it all!!! You and your family are in my prayers, and I wish you a safe and positive trip to Florida!! You are a strong youong lady with a supportive family…good things come to good people!!! Praying for miracles in your life!!
Angela Hovermale
BBMS
Oh Kathryn, you are an amazing young lady and we are praying so hard that this treatment in Florida is the answer. I pray that you will be as comfortable as possible on the car ride down and that you will not be in ANY pain on the trip home. This website is awsome and thank you so much for keeping us informed!
Kathryn, please know that our thoughts and prayers will continue to be with you and that God will perform his healing throught ‘Khani Baby’. We hope your trip to Tampa will bring you much relief.
Love and God Bless
Ron and Diane Steinman
Sarnia, ON
Canada
I agree with many others who have expressed that Kathryn is an amazing young lady & David, Rita & Joe are an equally amazing family. Your strength & courage are inspiring. We hold you all in our thoughts and prayers so very often, but especially as you venture off to Florida. Praying, praying, praying that the Ketamine treatments are the ones that finally work to ease Kathryn’s pain. Pretty impressive that support is coming from all over the country! Love, Rick & Barbara Jehu
Dear Kathryn, Rita, Dave & Joe,
You’ve been in our prayers and we will continue to pray for you. May this trip to FL be very beneficial and therapeutic and make a major difference for you. I love your website, y’all did a great job. It will so helpful to all of us who are concerned about you.
Love, Kim & Dave Bayford
Kathryn, Your trip to Tampa offers the promise of many good things for you and the family. I will be praying that all of you discover the healing you need. St. Augustine is known for its miracle water. Surely, Tampa is just waiting for you. When I was a little girl I went to Tampa with my family and brought back a little souvenir. I can still picture the little monkey climbing up a palm tree to get one of the three coconuts. Bring back good memories!
Something that would make this wonderful website even greater…your guitar music.
Love and prayers to you and your family.
Gail Gilligan
You are a good writer! Keep it going on your blog and anywhere else you can find.
Hi Kathryn
In reading your blog it is clear that besides being talented in music you are also an excellent writer. You are in our prayers and we wish you much success in Florida. Sue says to tell you we must go out again for ice cream, Sue’s treat :). Say hi to everyone for us.
Sue and Lorne
Hi Kathryn, Joe, Rita and Dave—Thank you so much for putting this website together—I read every word!! James and I pray for you every day and we are excited about what God is going to do down in Florida. Thank you for giving Him the glory. “And those who know Your Name will put their trust in You, for You, O Lord, have not forsaken those who seek You.” Psalm 9:10 Love you all. Shannon, Jimmy, and James Harrell
Thanks Rita for incluning me on Kathryn’s website ! Its awesome and it will be nice to keep up with the comeings and goings ! The Florida trip sounds VERY POSITIVE ! I will be looking fowars to all the ppositive updates the Dr. will bring to her 🙂 Miss you , Hope all is well ! June
Dear Kathryn, Rita, Dave and Joe. What a journey!!!!!!!!!! My prayers and my heart go out to all of you. Rita you have done an amazing job on this website!!!!! And Dave, you keep them laughing. Joe, what a sweet brother you are!!!!!! And most of all, Kathryn. I have no doubt that you will come away from all this stronger than you are now. A bit of a rough road ahead but so worth it…..no stones left unturned. God’s peace and blessings to you. Love Robin Stariha
XOXOXOXOXOXOXOXOXOXOXOX
Kathryn, I doubt you remember me, but I am one of your mother’s clients. I just want you to know that I have been praying for you everyday and will continue to do so.
Regina Carson
Good afternoon McDonald! I thought of you first thing this morning and pray you got off to a good start on your trip.Kathryn,we and so many others keep praying that the Lord grants you relief from your pain as we know how terrible it can be. Rita, hang in there and try to get some rest along the way. Dave, just keep on keepin’ on. Our prayers continue. Mary M.
Hi Kathryn,
Godspeed to you in your upcoming travels! Please know I’ll be thinking of you, and waiting for your return. I love you.
Hey MacDonald Family! Praying for a safe trip and blessings EVERY step of the way. You guys are amazing. We will be checking the website to find out how, specifically, we can pray for you. BTW the website is awesome.
Love, The Morgan Family
Rita, I am so sorry I was out of town and missed the prayer time with you, but this site is wonderful and I’m thankful to be included. Praying God will astound you, sweet Kathryn, Dave, and Joe with his peace and blessings this week!
Love you!! Debbie
Hi Sweet Family,
Thank you for allowing me to be included in your website prayer team! Please know I am praying for you all. I pray that God will grant you peace, courage and comfort during this time. Praying for safe travels to and from Florida and that your guardian angels go before you and surround you with their care.
Much love and lots of hugs,
Jean xo
I’m glad you’ve included me in this website as I’ll be wondering how things are going as I pray for you all, esp. Kathryn, and for this to be successful.
XXXX Carol
God is so faithful to bring you to mind quite frequently so I can lift up a prayer for you guys. Deuteronomy 31:6 says “Be strong & courageous. Do not fear or be in dread of them, for it is the Lord your God who goes with you. He will not leave your or forsake you.”
Rita & Dave & Family,
I am so sorry to hear about all your problems, Laurie posted to Renee’ an Renee’ posted to me. I just learned today.My Prayers are certainly with you and your family. I hope everything goes well for Kathryn. If there is anything I can do for any of you, please let me know. Love & Prayers, Marsha Wilmer-Oller
Dear Kathryn,
We prayed for you as usual tonight before Jonah and Ethan went to bed. I also find myself praying for you and your family during the day. I pray that God gives you strength to trust in his love and promises–even when the pain screams otherwise. I admire your Christian maturity and everything that God has graciously worked in you and your family. May God grant you healing.
With love,
Pastor Seifert
You guys are so amazing and I thank you for all of the prayers and the good wishes… We’ve successfully made it through the trip and we’re in Florida settling into our room. I’m a tiny bit nervous for my consultation tomorrow with Kirkpatrick, but with as many people that are praying for me, I don’t really think I should be so nervous. Love you all and many blessings to everyone.
Our thoughts and prayers are with you all! You are so precious to our family. I hope Kathryn will find some relief, but it would be wonderful if God chose to take all her pain away!
Kathryn,
Just a note to let you know that I have been praying for you and your family daily. The following verse helps me cope when I’m faced with challenging times. “Don’t be afraid, for I am with you. Don’t be discouraged, for I am your God. I will strengthen you and help you. I will hold you up with my victorious right hand.” Isaiah 41:10
Love and peace to you all!
MacDonald Family,
You all have been in our thoughts and prayers during this important journey. You are truly a remarkable family. Kathryn, your faith, strength and courage are inspirational to everyone. We will continue to keep you in our prayers.
hey guys. just read your update and PRAY the ketamine knocks the S__T out of CRPS!!!!!!!!!!!!!!!!!!!!! kathryn, i am soooooooooooo sorry about the pain you go through. your mom, dad and joe are very special people….nothing better than your loved ones helping you walk this journey. be safe, sleep well and sweet dreams. lone and God bless
Hello McDonalds,
Thanks be to God that you had a safe trip. We continue the prayers and I can just hear those little Seifert boys voices asking God to keep you all, especially Kathryn, in his care. I too have thought of you so many times each day and taken the opportunity to say another prayer that his will be done. Continued prayers and blessings. Mary
Rita, very recently I stubbled upon a little notebook which I had when we studied the Mary/Martha book. (I never throw those precious things away!) Anyway, I have recorded there our prayer requests. It was April, 2008 and we were praying for Kathryn’s knee damage and therapy, etc. Of course, at that time we had no idea what the future held. I can’t help but notice these requests (for all our children for one reason or another) are right in the middle of my notes on the study and nestled among them were these verses I had to share with you. Ephesians 3:16-21, “that He would grant you, according to the riches of His glory, to be strengthened with might through His Spirit in the inner man, that Christ may dwell in your hearts through faith; that you being rooted and grounded in love, may be able to comprehend with all the saints what is the width and length and depth and height, to know the love of Christ which passes knowledge; that you may be fitted with all the fullness of God. Now to Him who is able to do exceedingly abuundantly above all that we ask or think, according to the power that works in us, to Him be glory in the church forever and ever.”
That is my prayer for you and your precious family. Love you!
K Kudos to my niece, whose
A Admirable attitudes and
T Talents,
H Honorable and
R Robust spirit
Y Yield awesome strength to
N Noble endeavors in her life. I love you and wish you home well and soon.
My love and prayers to Kathryn, Joe, Rita and Dave on this latest journey!
Ron and Claudia want you to know you are so very much in our prayers and look foward to you coming home with great results !
Prayers coming your way and gratitude that Dr. K. is giving you so much information, help and hope! It’s an awesome answer to hundreds of prayers. Do not worry about schedules and appointments “back home”. Nothing is more important and precious than this time you have with Kathryn and the doctors in Florida. We will all be here waiting when you return. Love and prayers!
Rhonda
My prayers & thougts r w/ u & ur family as u find help 4 ur CRPS pain. Thinkings of u & ur famly all the time through thi rough time. please keep me posted.
Praying for patience and courage on everyone’s part!
Tomorrow at 9:30 heaven will hear the sound of many doing deep knees bends. The one who ask us to pray will hear and answer us.
Love,
Francine
We just returned home from an LWMS rally — where we were reminded how difficult it can be for human beings to accept God’s timing. We know that he’s a God of love, wisdom and power — and he cares for us. Though none of us welcomes it, we most often grow from adversity.
Garden stones in front of our house read, “With rain in the heart, I grow like a garden.” Rejoice that God cares for you. He is sending you rain to help you grow, not leaving you to shrivel and dry in a drought. May you thrive in the rain!
glad u & u family made it safely 2 fl. please keep me posted on ur progress & u r & ur family r in my thought & prayers daily.
Mindy Ziemer
Remembering you in prayer, I was reminded today that God hems you in – before and behind you – as you walk this road. Asking “Him who is able to do immeasurably more than we can ask or imagine” to meet your need, for His glory. Trusting with you all that our great God hears and answers prayers. Kathryn, stay strong. We are praying for you, and believing for your healing. Love to your whole family, the Foldy5 (Adam, Christy, Ashton, Lauren & Nate)
You have been in our prayers and we hope the treatment gives you relief from pain. Thank you for including me on your website, it has been great to read .
Mary murphy
Praise God for his blessings! It sounds like things are going well as the Lord keeps you all in his hands. Kathryn, you are a testament to all of us who may doubt the faithfulness of our God. Continued prayers and blessings. Mary M
hey guys. hope all is going better that than expected…i know you all miss joe!!! kathryn, i pray that each day you get more and more substantial and permanent pain relief….i wish i could take some of your pain onto myself. so glad you and mom and dad are sleeping…………..ahhhhhhhhh. God loves you so desperately kathryn and wants you to have peace. until the next time……..love and God bless, robin stariha
Thinking about all of you and praying for Kathryn’s comfort and healing, and for comfort and peace for you and Dave. We can’t wait to see your smiling faces back in Richmond soon – but for now, take care of Kathryn and focus on the most important job in your life right now! Hugs!
Rhonda
oh, I have goose bumps & chills after reading today’s update. Sorry to hear Joe had to leave & that K got sick toward the end of the infusion. However, SO grateful Joe could be with you all – his help to you is palpable in your messages. Such good news to hear you all slept & that Kathryn is experiencing some pain relief. Will keep the prayers & positive vibes going this week as the Ketamine doses increase; giving thanks for your excellent doctor as well. Our hearts go out to all of you! You have been among our “rocks” in the past few years; we’re honored to be among yours.
Love, Barbara & Rick
We are so happy to hear that the first treatment went well! Hang in there Kathryn…..God will continue to take awesome care of you! What a special blessing to have such a wonderful facility in Tampa with such a knowlegable doctor. We think about all of you often and keep you in our prayers! 🙂
The Kuskes
Hi guys. We monitor your progress each evening. One down; way to go. Kathryn, when we saw you last summer we were so impressed by not only your wit and charm, but also your fortitude. You have a wonderful spirit, and are an encouragement to others. Stay strong. God bless. Sue and Lorne.
Kathryn I’m very glad that the infusions r helping w/ ur pain. I’m glad that ur pain has decreased as much as it has this quickly. I’m very proud of U & ur family that they’re helping u get through this difficult time. U & ur Family r always in my prayers. please keep me posted on ur progress.
Love & Hugs,
Mindy Ziemer
Prayers and love coming your way! Kathryn’s update was so encouraging and it’s wonderful to see her progress on this journey – physically, emotionally, and spiritually! Love to all of you!
God is so faithful and good even in times of trials – what a blessing for Kathryn to have such wonderful loving family to surround her. His people are continuing to lift you up! Our love and prayers are with you continuously.
Rita: Rhonda Day is my sister and she told me about your daughter. My thoughts and prayers go out to Kathryn, you and your family. It’s nothing worse than watching your child suffer and not be able to take the pain away. However, the Lord is in your situation and will comfort, strengthen, protect and surround all of you with love.
Great pictures & good news from Kathryn herself.
Dave, Is that another grey hair? 🙂 (Rick made me do it!!! Ha!)
Praying for you and your family Kathryn….
Kathryn, thanks for your update after the second treatment. It is good to hear from you, in your words, how things are going. One word came to mind when I read your post: WARRIOR. You are a warrior, Kathryn. You are so brave. Hang in there, and keep fighting hard. You frequent my thoughts and prayers. Stay strong!
Hey Kathryn,
Hope you will start feeling better in the days to come. I will be praying for you and thinking of you often. Get better so you can dance again! 🙂
I look for your updates each and every day. I’m so glad some relief is already being felt! Can’t wait to see you guys back here. We are thinking of all of you so much throughout each day. Love you guys tons and tons! Hang in there!!! And to add to Barbara’s comment, I really do think that Dave does have another grey hair or two 😉
Big hugs!
Hi everyone! So glad to read the updates and enjoy the pictures. I have been praying. The Lord has awakened me in the night the last 2 nights and Kathryn is on my mind. So prayers are going up around the clock! Blessings to you all. Love and prayers, Mary Kay
Keeping you all in my thoughts and prayers.
Katherine I do not know you but I have known your mom for many years. I know what a kind and loving lady she is so I am sure you are probably just like her. I wanted you both to know that I will send up prayers for improvement for you Katherine, and for RIta’s strength to support you in all the ways that you need her to as your mom, your friend, your caregiver and all the other ways she is called on to help you.
Sincerely,
Betsy Kidd
Hello everyone! Thank you for taking the time to share all your news with us. Prayer is a powerful thing and I’m glad that you are inviting so many to help you in this special way – thank you for that honor. We look forward to hearing more updates from you and pray that God grants you peace and understanding as he leads you on this journey.
learned of you through richmondmom.com. sending comforting thoughts and healing prayers your way. best of luck with the current treatment plan. hoping it brings relief, rest and resolve to continue your journey. {{{hugs}}}
Praying that you’ll continue to feel better and better. K.
Praise the Lord for all he’s done and is doing for Kathryn. Esp. for “restoring her soul” as he treats her with what is exactly right for her in his Way. Truly “the Lord Jesus is her Shepherd. She will lack nothing.
Oh my goodness, I have tears running down my face. What great news on a Sunday morning! We are praying hard that the pain will continue to leave and I think it is truly a miracle that her other ankle is not a problem! Have a safe trip home MacDonald’s.
Thanks be to God! This is a good report, dear friends. Continuing to remember you in prayer.
So glad to see a beautiful smile on your face, Katheryn. PRAISE THE LORD! I hope you guys are able to enjoy your remaining time in Florida. Praying for your safe return and many more blessings all along the way.
Very glad ur pain has practically disappeared. I hope & pray it doesnt return. U & ur family r always in my prayers. Hugs,
Mindy Ziemer
So thrilled to read your great news. Thinking about you daily. Safe travels. Love to all. The Holts
I’m glad ur pain is lower. I hope the warm water pool helps ur pain stay lower. U & ur family r in my prayers.
Love & Hugs,
Mindy Ziemer
Kathryn,
For some of us, a lower level of pain is still much of a blessing, even though we have to continue on our medication. It is so much easier to not only get through day to day, but enjoy things the pain did not let us enjoy. We will thank the Lord for his blessings and continue to pray daily that he continues to keep you in his care. Blessings and Love to your whole family. Mary M
Very glad to hear that the treatments helped in reducing the pain. Praying for your safe return to Richmond. K.
Yeahhhhhhhhhhhhhhhhhhhhhhhhhh!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! see you soon. love and God bless, Robin Stariha
Have been in Durham this past week holding Cole and praising God for children…your children and your family. I have also been praying for Dr. Kirkpatrick and for the treatment to give relief to Kathryn. Praise God!!!! Safe travels home as we continue to lift you in prayer. xo 😀
Not exactly as I had prayed for – I wanted, of course, for the pain to be completely gone; BUT AS ALWAYS, we have to trust in God’s sovereign grace for we believe He knows what is absolutely best for us. From living with pain in Donnie’s life, I know the reduction in pain is a sweet blessing. Will continue to pray for even more wonderful results and I cannot wait to hear all the ways God worked miraculously! Love you!
Dave, I’ve been reading the updates and hope everything continues to get better for your daughter. You and your family’s faith is strong…she is lucky and blessed to have that support! Have a safe trip back (or hope you had a safe trip back) 🙂
So glad you all are home and Kathryn’s function has improved! We will continue to lift her to the Lord who always sees and knows all we need. Love you!
I am so thankful that you all are home safe and sound and that you got to sleep in your own cozy beds last night! PTL! I know that felt sooo good. 🙂 God’s Plan B is ALWAYS awesome! As we push the button of faith God gladly carries our burdens upon his shoulders. Matt. 6:31 xo
Welcome back to Va…..there is no place like home!!!! We hope Kathryn continues to show and feel progress after your long journey to Florida. Your family is strong and tight which is a blessing to you and all fo us who care about you. Take care!! Tiia and Kevin
Glad you all are home and Kathryn’s FUNCTION is improved–OTs always care about FUNCTION! See you soon. K.
So good to hear that Kathryn has had a few good days. The picture is great. Reallyhappy to hear about Prom and looking forward to pictures!! Prayers continue for all. Mary M.
After a diagnosis of breast cancer, my husband and I sat down and make a list of “good” things about having cancer. We thought of 17 things. I can already see one good thing, and that’s the closeness of your family. Can you think of any more? How about you are becomming an anbassador for this illness and you can educate folks!
How wonderful to read your latest post on Kathryn’s birthday! God is so absolutely wonderful! To Him belongs all praise and honor and glory! Thank you so much for allowing us to walk through this with you and your sweet family and to see firsthand what God is doing.
I am so thankful that Kathryn is feeling much better and had a Happy 15th birthday! WOW! The prom date sure was blessed to have such a beautiful young lady on his arm!!! 🙂 Look forward to seeing you soon. PTL for all the blessings throughout this journey. My strength is made perfect in weakness. 2 Cor 12:9
Hope Dr. Kirkpatrick got to see the prom pictures!!!!! :))))))))))))))))))))))))
Kathryn looked beautiful in her prom picture. Looks like Prayers are continuing to be answered. Our God is AWESOME.
Kathryn, I am so impressed with your website and with YOU. You are an amazing young woman and a beautiful example of Paul’s words to the Hebrews: “Let us run with patience the race that is set before us, looking unto Jesus, the author and finisher of our faith.” Thank you for being such a light. You are an inspiration to many. Bless you. You are in our prayers.
I hope u can return 2 a pain free life U &ur family r in my prayers & thougts. please keep me posted on ur progress.
We will be praying for you. Just studied Psalm 27:13 in my study this week.
Just returned from Salt Lake City where we attended our grand daughter’s confirmation. The questioning reminded us of all our God has done for us and how much he loves us. And he always keeps his promises. Stay strong as you fight the pain.We will continue to pray that the Lord reduces the pain and leads you to make the best decisions in difficult situations. Know that his love has no bounds and will never end. Blessings to all. The Micheels
Just a note to let you know we are thinking and praying for all of you. Blessings and prayers. The Micheels
Just wanted to let you know we are continuing to lift you guys in prayer.
Thinking of you all and keeping you in our prayers. Sarah and the boys will be coming at the end of June and I will be going back to Richmond with them in July. Hope to see you then. Blessings! Mary Micheel
Just saw a report on our local TV station on CRPS about a doctor in California who has used the Ketamin coma therapy. They interviewed the gal who was “cured”, but not until after undergoing many trials and lots of pain. And so our hope continues that the Lord will grant you relief from your pain. Prayers and Blessings. Mary Micheel
I hope and pray that the docs at MCV are able to treat Kathryn’s staph infection and she will find some respite from her pain. Congrats to you, Kathryn, for being able to focus on your studies and guitar and to accomplish so much while dealing with this miserable illness!! Love to you and your family.
kathryn U & ur family r always continouslly in my prayers. please keep me posted. Hugs, & Love 2 U &UR family. please keep me posted on ur condition.
Kathryn and family,
So sorry to hear that you’ve had these additional struggles this past month or so. Kathry, very proud that you got an award at school, especially with the pain that you endure daily….it just reinforces what a strong, vibrant young woman you are! I pray that you will find some relief from the pain, and that you can have a fun, relaxing and enjoyable summer. Keeping you all in my thoughts and prayers.
Hello McDonalds. You continue to be in my thoughts and prayers daily. Asking the Lord to give you all the strength and energy you will need as you go forward with the next step in Kathryn’s treatment. Remember his promise that he will never leave us or forsake us and GOD KEEPS HIS PROMISES. I enjoyed seeing you and visiting with both of you, Dave and Rita and appreciate all you do to help Pastor and Sarah. God’s continued blessings as you move forward. Mary Micheel
Hello. Went to Bible Class tonight. Subject was the Lord’s Prayer, Give us this day our daily bread. A good reminder that this applies to both our physical and spiritual needs. JESUS, THE BREAD FROM HEAVEN, is there to feed our soul every day. The LORD, our god who always keeps his promises, provides what we need at the proper time (Psalm 145:15,16). We should be asking god for contentment and guidance in our daily life, trusting that he will provide us with what is best for us at any given time. He is in control. Take heart in knowing that he knows what we need and will provide. Praying for relief from pain and success of treatment for you, Kathryn. Praying for blessings and the stamina to manage daily challenges for all of you. Mary
_____Great minds think alike Mary 🙂 !!
So fun that you studied the Lord’s Prayer! My thoughts and prayers have been intent on God’s “daily bread” or His daily provision for our needs since receiving the tough news from Anthem several days ago. I began writing the July 31 update days before receiving that blow of bad news, yet I knew that I wanted to reference Matthew 6 and the Lord’s Prayer. It is precious that Jesus’ foreknowledge, His presence and His promises even comfort our thoughts in times when calm thoughts seem like an impossibility!
Your friendship and your encouragement bring me comfort and smiles- THANK YOU SO MUCH FOR YOUR LOVE!! -Rita
Thanks for the update guys. We will keep you in our thoughts and especially prayers. Expecting miraculous things for you guys. Love ya!
_____I love you guys!! Your trusting prayers always refresh my heart!! -Rita
We will be thinking of ways to raise funds for this very worthwhile and God pleasing effort. I am sure the Lord will come through in this area as he does take care of our “daily bread”. If there is anything I can do to help, please let me know. Retirement affords me the time to be able to work on things like this…and prayers, prayers, prayers. There can never be too many! We sometimes forget or hesitate to pray when God tells us in Hebrews 4:16 to “come boldly unto the throne of grace, that we may obtain mercy, and find grace to help in time of need.” Thoughts and prayers go with you as you travel to Forida. Blessings to all. Mary
I hope & pray you get lasting relief from ur treatments. U & ur family r always in my prayers. please keep me posted on ur condition & how ur feeling.Hugs & Prayers Mindy Ziemer
We are so glad for your safe travels and we continue to pray for your journey ahead in the next few days.
glad U all made it safely to tampa.
Glad to hear you had a good trip. Good thoughts go with you next week. Mary
Hi Kathryn and MacDonald family!
You might not remember me, but I stayed at your house a few years ago when the Luther Prep Singers came to your church (2009, I think?) I also came to help with music for your Easter service in 2011. I visited again this weekend and heard about everything that’s going on, and Sarah gave me a link to this blog.
Kathryn, everyone I’ve talked to has just raved about your positive attitude and incredible strength, and it’s obvious they’re right as I’m reading through this blog. I’ll keep you in my prayers, and keep staying strong! You’re my hero!
_____Hi Emily- it is so nice to hear from you- yes I remember your precious self!! Thank you for your prayers!!
love and blessings -Rita MacDonald
Just a quick note to let you know I have been thinking of and praying for you all several times today. You (all of you) are never far from my mind. Keep the faith and know He loves you and continues to hold you in His hands. Blessings. Mary
_____Thank you Mary! We love you! -Rita and the rest
I’m really missing you all! Kathryn, you give strength to others out there!!
Love you BUNCHES!!! Call me when you can for an update!
Hope your treatments continue to go well for U. U & UR family r always in my prayers. please keep me posted on ur condition.
_____THANK YOU for your prayers Mindy! I hope that you are still feeling better!! I wish that Kathryn felt up to visiting and that we could come to see you. Keep shining Mindy! We love you -Rita
So pleased to hear it’s going well so far. Lots of prayers going your way. Mary
Hey Rita & Kathryn & Joe,
Just to let You know i’m still enjoying being totally pain free w/ both neurostimulators (Head,Neck) Set @ 20 Each. Please tell kathryn & joe & dave & rita I love them . You guys will always be in my prayers. please keep me posted on kathryn’s condition. I also wish You guys could come visit. Hugs
So glad today went better! Praying for you all!!
______Thank you Debbie! You, Pastor Ronnie, Anna Beth and Aaron are on my heart and in my prayers. -love and hugs, Rita
Praise God that things went better today! Kathryn, you are your own best Warrior! Just one more day. Praying things go well again tomorrow. Love you all. Mary
Hey Joe could you give me a call sometime? I would like to run a fundraising thought past you. Send me an email address and I will email you my phone number. Thanks. Mary
You are each one in our prayers! I hope that this treatment brings much relief! We love you!
_____Thank you Sarah -I am so thankful for you guys!! much love, Rita
Kathryn, You are on my mind so many moments of each day and more importantly in my prayers continually this week, Love to all the family, Kathie Hollon
HI Kathryn and Family! I hope all is well and your treatment works crazy good this time. Can’t wait to see you back at church! God Bless!! Brandy
______Thank you Brandy!! love and blessings -Rita
Hi Kathryn,
My name is also Kathryn and I also suffer with CRPS. Your site caught my attention because we both have the same name spelled the same too which in my experiences is rare unless you’re around 60. We both seem to have a lot in common. Ive had CRPS since August 2008. I would love to have someone to talk to who knows what I’m going through because I’ve never met anyone else who suffers from this. I want to start a support group but I’m not sure yet on how to go about it. I feel so alone sometimes even though I have so many people who love and care about me but they just can’t know what it’s really like. I’m just hoping that we can help to encourage each other and swap stories and experiences. I hope to hear from you soon! 🙂
Sincerely,
Kathryn
Kathryn,
I’m praying this will the treatment that turns things around and it will last. Very thankful things went easier this time. Prayers for a safe trip home. Mary
Dear Rita,
Have been thinking of Kathryn, hoping and praying that this latest treatment brings relief – permanent relief! Also keeping you & family in my prayers.
With love,
Carol Bradley
______Thank you for your hopes and for your prayers Carol!! -love and blessings, Rita
Praying things are going well since the treatments. You continue to be in my thoughts and prayers. Mary
I am so glad you’re home safely! It sounds like prayers are being answered for Kathryn – time will tell but always remember that God is there no matter the outcome. He will carry you through to the other side! Hugs!
The absence of pain is a most beautiful thing. Those with debilitating pain understand that so well. My prayer for you is that this beautiful thing will be yours. God bless you and give you a special blessing today. Kathie
_____Thank you for your lovely words Kathie. I know that your heart is especially tender to pain because of all that you have been through. I am so thankful for your frequent prayers! -much love, Rita
Glad ur pain is so much lower. Prayers going ur way that ur pain stays lower. U & ur family r always in my thoughts & prayers. Also please tell ur family that I’m still enjoying beening totally pain free. Both Neurosrimulators (head,neck) set @ 20 Each. please keep me posted on ur condition.
______Thank you Mindy. We love to remember you and your family in our prayers. We are so thankful that you remain pain free!! God bless you sweetie!!
Thanking the Lord for your safe return home and a reduction in you pain, Kathryn. Will continue praying for your pain relief. Continued Blessings! Mary
______Thank you for sharing encouragement, love and support dear friend! I wish that you did not know pain so personally but I thank God for your willingness to pray and for your ability to hope and love. You shine! love, Rita
Kathryn, I’m sorry to hear about your pain while exercising. I had a scare a while back and thought I’d have to go through a round of radiofrequency treatments on both hip joints due to extreme pain. A few days later, the pain simply left. Don’t have any medical explanation for it coming or for it going. Just prayed a lot . Will ramp up the prayers for pain relief for you dear, sweet girl. And Rita, a day a time, knowing that there are many people keeping you in their thoughts and prayers every day. God will continue to watch over all of you. Blessings. Mary
Hi Kathryn,
Please know I am lifting you and your family in prayer.
Much love,
Jean xo
Happy to hear you were able to get to church, Kathryn. I am sure there were many people very glad to see you. The prayer list continues to grow daily with more friends and family needing to help of our ever-present, all powerful God. It is good to know that whatever we have to deal with, it is never too much for Him. So, we continue to go to that throne of grace with the request that He will give us strength to endure the trial until we have reach relief. Prayers continue. Mary
I’m vey glad ur pain is much lower & ur need for clinic time is much less & ur need for pain medication is also much lower. U & UR family R Always in my prayers. Will continue to pray daily for U & UR Family. Please keep me posted on ur condition. Hugs & Love,Mindy Ziemer
That was so beautiful, as is she. I am sitting here wiping tears. I know that makes all that hard work worth it for you guys. I think it so amazing when God sends beautiful words of encouragement at just the right time and through just the right person. I am so happy for you guys and pray that God continues to carry you through.
So blessed by these words by Kathryn!! Thanks for bringing tears to my eyes this morning. We love you all and are praying, praying… Love, Shannon, Jimmy, James and Jaeden
Bless the Lord Oh my soul. Bless the Lord Oh my soul and forget not all his benefits. Wow! He keeps His promises! He hears our prayers! He answers our prayers! What a great track record. I guess I will just keep thanking Him and praying that even the little pain relief continues and gets greater. God’e blessings to you all. Mary
Kathryn, hang in there, take a deep breath, sloooow down and listen to that body. We just get so excited when the pain is less that we do too much. I know it took me a few experiences to learn that very hard lesson. I have to sit out that one next activity I really want to go to, see, or participate in. I have to choose between events and try not to hurt someone’s feelings. Lots of people just can’t understand how coming to eat dinner can be exhausting or increase your pain. And, it’s exhausting to keep trying to explain. Remember that whatever you are doing, it’s your second job. Job one is your constant battle to manage the CRPS.. You are incredible to have accomplished what you have so far and our prayers include asking That God continue to give you the strength to fight this battle. Like Aaron did for Moses, your English assignment reflects that your Mom, Dad, and brother are holding up your hands through the battle. The Lord placed you with a wonderful, loving family to accomplish this. Prayers and blessings. Mary
Hi, everyone. I hope all is well (pain is less0with you, especially Kathryn. Prayers continue for all. Blessings. Mary
I’m very pleased w/ it improvements ur treatments have made & am glad of the reduction in pain. U & UR family R always in my prayers. I’m still continuing to be totally pain free. Both Neurostimulators R Set @ 20 Each.(Had,Neck). please keep in ur prayers.
Hugs & prayers,
Mindy Ziemer
Thanks for the update. How do we purchase the bracelet? We eill be in Virginia at the end of this month and hope to see you at church. This trip is to be just a vacation vacation….get to see the sights and play. Can’t wait to see the kids. Happy to hear Kathryn has been able to get out of the house. Prayers continue. mary
Rita, I went to the pain clinic today for prescription refills. The PA i see said they see a number of patients with CRPS. She gave me a booklet and CD for you which I will bring along on the 24th. You and Kathryn may already be familiar with this info, but she said they have had success with this treatment. Glad to hear that Kathryn can still get around. Sorry to hear that the pain is still there. I will be going for a replacement for my defibrillator. I beep every morning at 10:00am on the dot! Just like the smoke alarm when the battery needs changing. The Cardio nurse thinks the device may be defective because I haven’t had it that long. It may be ubder warrany so….more paperwork to fill out. I’m gonna ask the doc if he can just put in a zipper this time instead of stitches in case we have to do this again. Prayers keep going for all of you. Keep laughing, smiling and loving those around you. Mary
Rita, you are in my prayers every day, as is Kathryn. I will add Apryl to the list. Be assured that the Lord is there for you and will keep you strong as he has so far. GO TO HIM AS OFTEN AS YOU NEED TO AND BE BOLD IN ASKING FOR HELP! He himself has commanded us to do so. He loves you. He loves Kathryn. He has promised you the gift of eternal life through his son, Jesus Christ. He keeps his promises. Let me know if there is anything I can do. Mary
Hi Rita & Kathryn,
I have a friend at church who would like to make a small donation to help with K’s treatments. Who should she make her check out to?
Barbara
Hello to all of you. It was wonderful to see you at church a couple of weeks ago. We had a great time with Mike, Sarah, and the boys. Isn’t it great when you like your grown-up kids? Thanks be to God for his guidance and care as they were growing up. I know how proud you are of both your kids. Kathryn you looked great. Thanks for hanging in there. You continue to make many people happy. Prayers continue daily that your pain will decrease. Take care and remember that your Savior is with you at all times and loves you soooo much. Mary
Rita, Kathryn and all, just letting you know you are always in my prayers and not a day goes by without request to ease your pain, both physical and other. Needed the reminder asked by Pastor White, “What is there here on earth that is better than the promise God gives of what heaven will be like?” No more pain, no sadness, He will wipe away all tears…
Just the absence of the ravages of sin will be such a glorius relief for so many. And to think, that is just the beginning of what He has in store for us…Keep the faith. Hold each tightly. Continue to support one another. Don’t ever hesitate to ask for more support from anyone. Remember how much you are loved by so many. Continued prayers and blessings. Mary
Good to hear that Kathryn is pushing on. Will pray that someone near you will be willing to do the treatment. Will also pray for Apryl…that God will grant her some peace as she struggles through this difficult time. Please pray for my Caleb and his Mom, Sarah. She told me this morning that he has RSV again. These are the times I really hate being so far away. And after the terrible news of the day, I really want nothing more than to just hold those babies close and not let them go! You hold that prescious Kathryn close. I truly hope those 20 little children in Conn. knew Jesus and will be spending Christmas in His heavenly choir. A blessed and love-filled Christmas to you all. Mary
FROM RITA—YOU ARE AN AMAZING BLESSING MARY!! I’M PRAYING FOR SARAH AND CALEB- WE ARE SO THANKFUL TO HAVE YOUR PRECIOUS FAMILY HERE WITH US AND THEY ARE IN OUR PRAYERS DAILY! MAY “THIS THING THAT HAS HAPPENED” (luke 2:15) BE FRESH AND VIVID TO YOU THIS CHRISTMAS!! MERRY CHRISTMAS- I LOVE YOU.
We went to the Jesus Cares Christmas Service this afternoon. I have not been to one since I workrd there 7 yrs. ago. I still knew most of the students and some remembered me. The joy they have sharing their faith in word and music is just as exciting as it was years ago. Kathryn, can you picture 15 adults with disabilities playing Away In A Manager and Silent Night with tone bars? They are so proud. They know why that Christchild came for all of us. They know they are sinners needing forgiveness. And, they know they have a God who loves them so much that he gave his one and only son to take their place. They know that they are just like you and me, forgiven sinners who will spend eternity in heaven with that loving god. Lots of smiles, hugs and kisses exchanged today with a group of people we have brought to Jesus.It was a good day. Merry Christmas to some very dear christian friends. Virgil and Mary
Happy and Blessed New Year for the MacDonald household from the Micheels. We pray that our good and gracious God will continue to guide and uphold us as we venture into another year. Thankfully we know that he is a God who keeps his promises. He listens to our prayers and is there whenever we call on him. We think of you often and continue to include you in our prayers. Always happy to see you when we come to visit. Take care. Love, Mary
Running out the door to do some shopping for work, but wanted to send a quick note. I’m so sorry to hear that the lovely young lady who played so beautifully for us a short time ago is now in such distress. Please know you are surrounded by our thoughts & prayers immediately. Much love, Barbara
Oh Rita…I am so sorry. Will put Katherine (and you) back in our prayers daily. We love you guys!
Dear friends, thinking of you and praying. Keep the faith. Mary
What a wonderful letter from your friend , Francine. She certainly captured what many of us have not been able to put into words. Her understanding of the need for prayer for Kathryn from all of us is so right on And, the rest of you special Macdonalds and the way you have supported her through this ordeal is remarkable. I look forward to seeing you in March when we will be in Richmond, so I can give you a real hug, Rita. Lord’s blessings to you all. Mary
Hang in there! I know you are a strong young lady who can not only endure this, but who can also reach out to others and be a source of knowledge and encouragment to others. I look forward to seeing your smile the next time I see you in the halls at Manchester.
I am so sorry to hear that things have been so incredibly difficult these last several weeks. I had hoped for some relief for you all. My heart is breaking. Please know you are in my prayers… We love y’all!
I am so sorry you are again suffering so. I truly know how terrible the unbearable pain is. So we will go to that throne and pray boldly that the lord gives you some relief and gives the doctors an extra measure of wisdom as theyy proceed with their plan. If love were able to erase the pain, Kathryn, it would be gone. So many people love you so very much and many hearts are hurting with you. Prayers and blessings to all. Mary
Dear Friends. Today in Bible Class, the pastor focused on reminding all of us to go boldly to the lord in prayer because just as our earthly fathers take care of us and listen to us, so God will listen to our prayers. And he will answer our prayers. When asking for spiritual blessings, the answer will always be yes. When asking for earthly things, the answer will be yes, no, or maybe…or maybe not now, but in any case he hears and gives us what he deems best at the time. I have had a difficult time this week dealing with KATHRYN’S situation. I know that he knows what he wants to accomplish, but it really struck me hard to see why this is happening. All those prayers, and still the pain. I do know that it is important to pray that the Lord keeps Kathryn’s faith strong, and he has done so. I will continue to pray for this and will increase the prayers for a reduction in pain. Part of the frustration is in not being able to do anything concrete. I’m sure you feel that frustration all the time. Rita and Dave, be sure to take care of each other. Know that prayers go out for you also. We will see you in a few weeks. Blessings and Prayers. Mary
Dear Mary, your honest sharing is always a wonderful encouragement that I am so thankful for. Your encouragement and prayer for us is such a gift- thank you so much!!
I spent time with the same topic recently and it gave me similar pause as well. But I realize that we are in good company with so many other sufferers that God loves.
God answers all the prayers offered for Kathryn in that God constantly makes His help evident and then He does the work in our hearts and minds that brings peace concerning suffering.
I love remembering the question John the Baptist asks Jesus from prison. The response that Jesus gave John leaves us knowing that Jesus is THE Savior and so has the power to heal Kathryn AND that He also has the almighty wisdom to know when to heal her. Matthew 11
Even so, I cling to His instruction to ask for anything in His name and His reassurance that our joy will be the fullest possible! John 16:24
Your love and prayers for Kathryn blow us away and leave us so grateful!! Love and hugs- see ya soon 🙂
Today Pastor talked about our inability to comprehend God’s love for us. Isn’t it wonderful to be stumped by somethig so wonderful for a change? To know he’s with us at all times, cares for us at all times, loves us at all times, forgives us at all times. I know that I’m not capable of doing any of those things all of the time. It was nice to take communion after the wonderful realization that my God does not expect that of me and that he has provided salvation for all who believe. What wonderful words, “My grace is sufficient for thee.” Hope that things are going a little better for you all. Prayers continue. Love and Blessings! Mary
Thought of all of you today as I was at the pain clinic to get my prescriptions renewed. I am so very fortunate and thankful that the medication still works most of the time. I continue to pray that Kathryn will have some relief as you progress with her new treatment plan. We need to rely on God’s promises as we know that he keeps them all. We know he has a purpose for ordering our lives the way he does, even though we often can’t see it. Take care. Prayers and Blessings to all. Mary
Our prayers will most definitely be covering Kathryn over the next seven weeks. God promises in Deuteronomy 31 that “He Himself goes before you and will be with you; He will never leave you nor forsake you.” In our church last week, we saw an outright absolute miracle from God so we know He is still on His throne. I am praying for God to steal the show again with Kathryn. We love you all!
It was wonderful to see you, Rita and Dave. The Lord surely holds that wonderful child in His Hands! She has accomplished so much with the medication! I know how difficult it can be and I,m rooting for her each and every day. Will continue the prayers for the Lord to keep her safe and give her the strength to make these weeks fly by for all of you. Thinking of you all and sending my love. Mary
Hello Dear Friends. I went shopping this morning and had the radio on. The song “Blessings” by Laura Story came on. I immediately thought of you, especially Kathryn. Couldn’t get it out of my head so looked it up on Youtube when I got home. It is so touching. The words “remember our home is not here”. Easter is our reminder of what awaits all of those who believe, all who have been given the wonderful gift of god’s grace. Free to us from a loving god! Today we remember our Lord’s last night with his disciples. The pain and suffering he endured for us in the garden and on the cross to defeat Satan…and his glorious resurrection. All to let us know what awaits each of us. It was a good day to also watch the video “Who Am I” by Casting Crows (w/lyrics). This lets us know very clearly who is responsible for our salvation. A Blessed Easter to you all! Mary
A Blessed Easter to all! After arriving at church at 6:00am to stir the hot milk for our five Nesco roasters full of bacon and eggs, going to 2 church services with the Easter breakfst sandwiched in between, running home, changing clothes, eating a bite, and runnuing downtown to the Milwaukee Repretoire Theatre for a musical show, I’m pooped. Happy to just relax tonight. Had several times to think of you and remember you all in special prayers. Kathryn, I pray that the Lord will support you through the next few weeks to effect your change in treatment. You are so fortunate to have such wonderful people who are supporting you. And, you have many others of us you don’t even know who care deeply and keep you in our prayers. Again, a Blessed Easter to all. Mary
Kathryn, Thanks so much for the update.
God Bless you, beautiful girl! Your courage is a wonderful example of how God wants us to live our lives everyday. I went to see the pain doctor the other day and gave her an update oon your status. She said she is so proud of you…that it takes incredible strength to do what you are doing. You are so very right about being thankful for what we have been given. And we have so much to look forward to. Hello to Rita and Dave. What a kid you have there…(make you a little bit proud?) Will be praying for continueed strength for all. Blessings! Mary
Thinking and praying for you all! Hope Kathryn is tolerating the treatment OK. You are all close to the heart. Mary
WE LOVE YOU MARY!!! Your prayers and comments are such a wonderful reminder of God’s love and help! I also like the songs you mentioned earlier. We pray for you and are so thankful for your encouragement!!
-Rita
How is that sweet girl doing? I keep praying for all of you. And as so much evil keeps revealing itself in horrendous ways, we hold steadfast in the love of the Lord who has done it all for us. Heaven is looking better and better every day.
Keep the faith and don’t hesitate to call on Him for anything! That’s what he encourages us to do.Love and prayers. Mary
Sarah tells me you are beginning the great new adventure. I have been praying all day and will continue to do so. I would love to be there to give hugs and hold hands, but will keep you all in my prayers. God be with you and bless the efforts of all the medical people working with Kathryn. May he give you a large measure of strength as you work your way through this step of the journey. Thinking and praying continually, Mary.
My darling Kathryn,
HAPPY BIRTHDAY TO YOU!! HAPPY BIRTHDAY TO YOU!! HAPPY BIRTHDAY DEAR KATHRYN!! HAPPY BIRTHDAY TO YOU!! AND WE LOVE YOU SOOOOOOOOO………
Hey baby girl – how’s stuff? I just wanted you to know how much we love you and are thinking about you. YOU are a part of our family and we all miss you and love you. I’m sending prayers your way. I’m also praying for your amazing physicians to have God’s grace touch them so they can transfer his healing hands to YOU!!!! You are an amazing young woman. I know it’s in God’s plan to have you healed and feeling well in no time. You have so much to accomplish yet.
Sammie is signing up to take her College SATs. She is also signing up for Behind-the-Wheel. So maybe when you get back, she will have completed it and can get her license. What am I saying??!!! No really, I want her to be able to drive (I think) and when you get back you can ride with her. Everything will work out. Why you ask? BECAUSE I SAID SO!!!!! All your brothers here are sending you their best wishes and funniest thoughts. (think Corey and Josh=CRAZY) We will be your long distance cheering section — GO KATHRYN!!! YOU CAN DO IT KATHRYN!!! WE LOVE YOU KATHRYN!!!! OH AND GET IT RIGHT DOCTORS!!! WE WANT HER HOME SOON AND STRONG AND HEALTHY.
Rita – Thank you for providing this link. I’m so thankful to be able to keep up with you guys. I know you know how much your daughter means to mine and to all of us here . We love her alot and are sending nothing but good thoughts and prayers your way. Please let me know if there is anything we can do for you.
Can’t wait to see you again. WE LOVE YOU!!!
Much love,
Mama Patty
Happy Birthday Kathryn! Kind of a weird way to spend a 16th Birthday but hey your on your way to good health and lesser pain. Apryl and I and our whole family are praying for you. Apryl is at Cleveland Clinic right now doing physical rehab. She is being given a small dose of oral Ketomine to be able to get through the intense therapy.She ia also gaining strength and feeling better. So when you and Apryl both get well we should take a dream mother-daughter vacation!!!! All our prayers and good vibes are being sent your way! Love,Toni and Apryl Levy
What a marvelous precious birthday gift from The King to one of His sweet little princesses! Praying for all of the family that the pain will be down to zero when you leave. We have been praying and lifting you before the throne all week. Can’t wait to hear the amazing journey!
Linda Cheeley
Oh my goodness, this blog just made me cry! Praying so hard for all of you and Happy Birthday!
Praise God from whom all blessings flow! I am so happy to see Kathryn’s pain is decreasing! I will continue to pray that the Lord continue to bless everyone working with Kathryn’s treatment. Blessings to all! Mary
Isn’t it wonderful to know He hears and answers our prayers? I am so happy for Kathryn and the rest of you!! Will keep the prayers going and make sure we give Him the glory. Love to you all! Mary
What an absolutely AMAZING God who loves us so intensely! We are continuing to lift you before the throne and we will continue to give God all of the praise and glory. His love and mercy and grace never cease to blow me away! It is such a pleasure to rejoice with you over this.
Kathryn, I hear you went to school today. I bet that felt great! Don’t overdo it sweet girl. So happy for you. Love , prayers, and more blessings!
This was amazing news to return to after being away on vacation – I know, we were vacationing (family visit to Memphis to see Christine) while you all fought this valiant battle. So glad to hear that many made Kathryn’s 16th so special & that she is a 3! REALLY? A THREE? How cool is that! Prayer, modern medicine, support from friends & family – it all plays a part, eh? Love to all, Barbara
Glad the treatment worked 4 U. Glad also that U r now CRPS PAIN FREE 4 5 DAYS NOW HOPE & PRAY it STAYS AWAY 4 A LONG TIME.
So happy that the CRPS pain is gone! I am feeling wonderful for you, Rita. You have worked so hard, all of you, to get here. Enjoy this time. We will all continue the prayers. It was great to wake up this morning paising God for this wonderful blessing. Told people at church who have been praying and they were also so excited to hear Kathryn is pain free. Pastor’s wife said, ” What a wonderful Birthday present!” What a a faithful God! Take care. Mary
Rita, I am so happy for you and Dave! You have done a wonderful job getting through the past 5 years. Rita, you kept going when you were too tired to go on, kept fighting when things looked too difficult to fight for, found answers when it seemed there were none left, kept paying when others would have given up. You have been a terrific example of a Christian woman for many of us. Jesus expects us to be an example to others…to let your light shine. Lady you just glow! HUGS!! Blessings and prayers! (have Kathryn and Dave give you the hugs I’m sending you) Mary
Dear,dear McDonald family,
Enjoy it,soak it in savor every moment!
We are joyous for you!
The LEVY family
Thought of all of you when we read the Second Lesson (Romans 5:1-5 NIV) in church this morning. Especially, “And we rejoice in the hope of the glory of God. Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perserverance, character, and character, hope. And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us.” All of you can certainly be described as persistent, having wonderful christian character and great hope. This suffering you have undergone has shaped you and formed you into what God wants his children to be. Praise the Lord! He has continued and will continue to bless your beautiful family. Blessings and prayers. Mary
How great to hear about evertone having a good weekend! Prayers that the healing for all continues. Mary
Rita, so thrilled to read your blog. This is absolutely wonderful news and truly prayers have been answered. GOD IS GREAT!!!!!
Hugs!
We rejoice with you all! Thank you for giving the glory to God and raising your thankfulness to Him… Luv ya. Jimmy, Shannon, and James
May the blessings continue as we praise the Lord foe what he has done! Love and prayers. Mary
Hei Kathryn!
I do not speak English very well, because I’m from Finland, so apologize for any spelling errors.
I was happy when I found this blog. My sister was also CRPS. My sister is only 14 years old. He developed CRPS, when he fell on his hand. Just like CRPS were not enough awkward, my sister lost her sight a year ago. Even though my sister is sick and blind, he knows how to enjoy life. The writings of you know how to enjoy life. I wish you strength and all the best. You know this for sure myself, but it’s never going to give up.
CRPS is never easy and it may never get better, but with it you can learn how to live. It is encouraging to read your posts, as you know, you’re talking about. I really hope for you that you keep going to fight against pain and trying to live a normal life as far as possible. some people see only the disease, but too small percentage of people will see all that is good. Enjoy your life!
Oops! Became a long post, sorry. Greetings from Finland!
Greetings, Maria.
Happy to hear that the pain relief continues. Prayers also continue. I guess we need to let Maria from Finland know about the joys that Jesus has brought to Kathryn’s life. I hope she reads Mike’s sermon(s) and the Holy Spirit uses this as a means to help her sister. We, the WELS, do work with folks in Scandinavia and I’m sure there is someone there who could work with her. I’ll certainly include them in my prayers. Think of you all daily and continue to ask for God’s Blessings. Mary
Sounds like the ordinary “little” things the rest of us don’t think much about will continue to bother Kathryn. But, it’s wonderful to see that she responded to some “regular” treatment. Rita, I learned last weekend at our eigth grade reunion for Madison Lutheran School that my best friend lives outside of Richmond and runs a religious retreat called Stillwaters. She has been a chaplain in almost all the hospitals and some hospices in Richmond. Her name is Ann Hogan and I will be keeping in touch with her from now on. The Lord works in mysterious ways! About 12 out of 31 of us made it to the reunion and we all agreed that those years were extremely valuable in shaping each of us. Getting a base in God’s word, memorizing both scripture and hymns were not work, but a worthwhile part of our education. Hopefully, I will be able to introduce her to you the next time I come out. Prayers continue for sweet Kathryn and all of you daily.
Mary
Will continue the prayers for pain relief and that the booster treatment works. Think of you all daily and send hugs. Mary
Hi Kathryn! Your mom left a sweet message on my blog, and gave me your website, so I wanted to say hello 🙂 what a small world that you guys are friends with our cousins, the Caparelli’s!
I just briefly skimmed through your blog and it seems we have traveled down some similar paths and symptoms. I really hope your ketamine booster this week helped to alleviate your pain, if not, I always find a multi-day booster series helps a lot 🙂
RSD is a horrible disease, and it is bigger than you, me, our families and our doctors… but it is not bigger than God! He is faithful, even when we feel like we’ve fallen too far for Him to catch us… He somehow always does.
If you ever need someone to talk to who ‘gets it’, don’t hesitate to email me- hopeforjessica7@gmail.com
I am praying for days with less pain for you, and a cure to this monster of a disease for us all ❤
God bless you!
Jessica Stevens
Wew.hopeforjessica.blogspot.com
Could not help thinking of you all on Sunday during the sermon. The text was: Genesis 18:20-32. Theme was “Pray like Abraham: Humbly, Persistently, Knowingly. It certainly reminded me of how we have been and will continue to pray for Kathryn. How is her pain level? Is there anything new or special we should be taking to the Lord in our prayers? We wish you all well Blessings. Mary
Hi Kathryn. I hope you are feeling as well as can be! We are a group of 3rd year medical students in the UK who are doing a research project on CRPS/RDS. We’ve just been reading your story and learning alot, thank you! We have to present our poster on the topic to the rest of our university (University of Bristol) in a couple of weeks and we really want to make the illness better known. We were wondering how we could get hold of the RDS bands that you feature on your blog? Are they produced by yourself?
My email is jd_1991_@hotmail.com
It would be so helpful if we could get some bands, other students and professors would defintiely be mpre attracted to our poster if it was slightly more interactive!
Thanks alot.
Regards
Jess
Hello to the wonderful MacDonalds. I had such a terrific visit with you a couple of weeks ago. I continue the prayers for pain relief, trusting that the Lord will continue to be with Kathryn, his dear child. And prayers also go out for you, Rita and Dave that he continues to give you strength as you travel this difficult road. Blessings to all. Use Still Waters as a place of peace. Ann will be happy to provide you a sanctuary. Mary.
A few thoughts from our bulletin today…Genesis32:22-30 Jacob’s wrestling with God at Peniel is an excellent example of how the Christian may be bold in his prayer life. Psalm 121 The Lord’s eyes are always upon us and His hand always beneath us. We can always look to Him for help in time of need. Luke 18:1-8a Christ’s parable of the persistent widow encourages us to never tire of bringing our prayers to the Lord’s throne of grace.
Encouragement to keep those prayers coming, remembering nothing is too much to ask for with a God who is ever-present with us. Prayers and Blessings to you all. Mary
It was so wonderful to see Kathryn when I was there! Kathryn, you are truly a beauty, both inside and outside. May the Lord continue to give you strength as you battle this awful enemy. Our prayers will continue, requesting that the treatments provide you the pain relief to continue through the rest of the school year. Rita and Dave, prayers that He continues to also give you strength in double measure as the battle continues. Think of you daily. Love and Blessings to all. Mary
Thank you so much Mary! We are so thankful for your prayers, friendship and encouragement. You know pain personally, yet you keep finding much humor and joy in life. We admire you as you fight the good fight to let Christ’s light shine through you!! Keep shining sweet friend!!!
Hi Kathryn, Its your school counselor. I am sorry I did not see you before your departure, but know that you have been in my thoughts and prayers. Hold tight to your faith and know that there is relief coming soon. Big Hugs to you and your family and we look forward to seeing a healthier you at school soon. With Love . Carol Simpson-Woodley
Hang in there Kathryn (& Rita, Dave & Joe). We love you and are praying for you.
praying for strength for you Kathryn as you endure these treatments to get a level of comfort we all take for granted. You have the gift of an amazing family to help you through this. May you get lots of rest and comfort as you do what must be done, Speedy week for you.
Thinking of all of you and praying for continued blessings and pain relief. Love and prayers. Mary
KATHRYN I know you dont know me but I grew up with your mom ( Suzanne Harmeling ) .We were best friends and almost relatives ( I dated your U.Micheal for a time) I have prayed ferfintly for Gods will to be done in your life as well as your families .My hope is that you do make a recovery and that you grow in the grace and knowledge of our Lord Jesus Christ.Your U.Paul was a wonderful man .He surely is gracing heaven with his music even as I type.
May God bless and keep you and your family close by his side.
Just wanted to let you know that I continue keeping you and your family in my thoughts and prayers. Kathryn, I can’t pretend to know the daily struggles you have due to CRPS, but I hope and pray that God will lift you up and bring comfort to you and your family. Rita, so sorry to hear about your brother’s sudden death. May your faith continue to bring you peace in your times of sadness. XOXO
Continuing to pray for Kathryn and family. I’m so sorry for all the struggles connected with this horrible sickness. Will especially pray for extra strength in the coming days. Much love to you…
Continued prayers that you remain strong as He holds you in His hands. Sarah said it was wonderful to see you helping at the Easter Egg Hunt at Living Hope. Love to you all. Know you are in my thoughts and prayers daily. Mary
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Still thinking of all of you. Rita, you go girl! I think the changes you have made in the area of the mold are great can’t wait until Mike and Sarah get their upstairs bedroom floors done. I’m sure the boys will breathe much better. Dave, I’m sure you’re tired, but it must be great to know the work is bringing about great results. Kathryn, it’s so wonderful to hear things are going better! Praise the Lord, for he is good!! You have been given wonderful, faithful parents, with their hearts and heads in the right place. Give them hugs from the Micheels. God’s grace be with all of you as you continue in the battle. Love and Blessing, Mary
Kathryn, what a beautiful woman you have become, both inside and out. You are my hero! I am truly inspired by you and I use your courage often as an example with James when he is complaining about something he shouldn’t be. (I need that example too!) Thank you for sticking in there and showing us how good God is and how wonderful your family is. We pray for you daily. God bless you! Shannon, J & J
I’m totally pain free with 1 working shunt the right shunt is working properly. All of this was done by Dr Fraser Neurosurgeon here in Lexington Ky & Lindsey Parker Physician Assistant I hope all of u guys like this wonderful news about myself.
Thinking of you, Kathryn, as you once again go through this difficult treatment. Prayers that the Lord blesses these efforts and gives you relief. You looked so wonderful when we got to see you . You do truly show others a wonderful example of a fine young Christian woman who acts out the type of life our savior wants all of us to do. Blessings to you and your family. You all are in our thoughts and prayers daily. Mary
I’ve been thinking of all of you much lately, accompanied with lots of prayers. Know that that tiny babe born in the manager came to this earth as a human to fulfill the promise His father made to us. He came to be a true man to experience all the pain and agony we humans do, to truly become our brother and know what we feel…so, just as we are in pain, he knew that pain and was willing to complete the task he was sent to complete. How much love did he show us? A great deal of a deep, caring love like no other. He will continue to keep us and sustain us through this life until he takes us to be with him in a place far better than anything we can imagine. God Bless you and keep you in the New Year, faithful friends. Love and prayers, Mary.
Prayers, Prayers, Prayers! Kathryn, my heart goes out to you. The Lord of all fold you in his arms and ease your pain, give you strength once again as you continue this battle. Thinking of you everyday and continuing to pray. Love, Mary
Continuing prayers for Kathryn and you Rita. Just read your update. Can’t imagine what you all are going through. So grateful to know God is with you in every step of this difficult journey. Love you much…
Oh give thanks unto the Lord for he is good and his mercy endures forever! Happy to hear Kathryn is feeling better. I know how difficult the system makes everything, but God gave you all the strength to get through it once again. May his blessings continue to surround you. Love and prayers! Mary
Thanks be to God! I am so happy to hear that Kathryn is doing well. God does indeed keep his promises. Prayers continue for all of you. Enjoy this time and we will pray that the Lord will extend this period of relief for a longer time.
We hope to come out in May and look forward to seeing you all. Blessings . Mary
Thinking and praying for you Kathryn and Rita. I am amazed and lifted by you and your family’s steadfast faith. Congratulations on making it safely through another grueling Ketamine treatment and also for your recent college acceptance!! May God continue to give you strength and comfort. Love, Kappie
Rita, what a blessing to have such a beautiful, young woman as your daughter. The Lord has shown you and Dave the right way to bring up this brave young woman. Prayers continue for all of you. I know how terribly hard it is for Kathryn to carry this burden. At this time of the year she must have a much better understanding of the agony her Savior had while in the Garden as He prayed, “If it be Your will, take this cup from me.” And, she is using her burden to work for good, rather than being bitter and angry. I have been sick for the last eight weeks and just starting to feel better. I cannot imagine the pain our Lord suffered when taking on the punishment for the sins of the world, But, I believe we can appreciate the agony He suffered in a way that others may not. But, thanks be to God for giving us that Savior to allow us to freely spend eternity with Him. Kathryn’s gift of music will surely be welcome there. Easter Blessings to the MacDonalds. Mary
If Kathren’s mother would please email me, i have a 23 year old granddaughter with CRPS. My daughter would like to ask you some questions by email. If you would email me, please, i can give you her personal information. I promise you she would not bug you. She is also a Christian and would like to be in contact with another Christian. Vkmccauley@gmail.com. thank you.
Rita and Kathryn,
My thoughts and prayers are with you always. The Lord has blessed you both with wonderful gifts, among which are amazing strength and courage. Your faith shines through in all you do and both of you give so much to those around you. I pray that He continues to hold you in His hands, blesses you with His Spirit, and gives you that Peace that passes all understanding. Love, Blessings, and Prayers to you all. Mary
Rita and Kathryn,
I am so sorry Kathryn was unable to participate in the study. I will continue to pray that the Lord will make the Dec./Jan. participation possible. Kathryn you are amazing and blessed with the courage and strength that most of us will never have during our earthly lives. May God give you all you need to endure until hopefully soon you will be free from all the pain and trials you have experienced. Rita, you are an amazing mom and a wonderful friend!
If Rita can contact me privately, i would greatly appreciate it. My granddaughter has CRPS, also. It would be such a blessing to be able to correspond with another Christian family going through this. Vkmccauley@gmail.com.
Thank uou
Hello to all you wonderful MacDonalds. Love, Prayers, and Grace beyond all measure to you all, and especially to you, sweet Kathryn. I certainly can identify with the pain and I wish I could take some from you to ease yours right now. Please flood that girl’s system with tea…hot, cold, sweet, any way you can to help reduce the inflammation that must be raging through her body right now. I am trying to do the same thing right now after my radio frequency treatments and it seems to be helping a little. Lots of sleep and sweet Jesus songs seem to help too. Thinking of you always. Mary
Prayers, prayers, prayers. Love to all. Mary
Kathryn, I will be praying fervently for you over these next several days as you receive these IV treatments. Praying for your strength also as you and the different family members make the trips back and forth. Love to you, Kathie Hollon
Kathryn, Thanks for putting yourself out there for the new trials for this medication.I pray for no less than a Christmas Miracle for you,Apryl and all CRPS sufferers. We absolutely need to keep the hope.God Bless Kiddo 🙂
Praying for more days with increased hours of <6 pain numbers…..hoping against hope in this season of hope, peace, love & joy for the Christmas Miracle above! Barbara
Being hopeful as well! Thanks so much for this update.
You and your whole family are lifted in prayer. Blessings and Love to you. ♡
So happy and thankful to see the progress for Kathrynn! We are hoping to see you soon-only 2 weeks and we can praise the Lord together. Hoping to see you all at Living Hope as we prepare for that glorious day of resurrection.
Love to all you wonderful people! Virg n’ Mary
It was wonderful to see all of you last week. I am happy to hear Kathryn’s pain came down and seems to be under control with her meds. Praying that it will continue. Love you all! Mary
I’m tired so I’ll just say, Hip Hip Hooray! An answer to many, many prayers! Praise God!
Thanks be to God who giveth us the victory through Jesus Christ! So wonderful to hear this great news for all of you. How wonderful to once again know we have a God who keeps is promises to protect us until we will join Him in eternity. Prayers of thanks and for continued success in pain reduction. Love to all. Mary
Kathryn, you are blessed by the Grace of God. Continue by your words and actions to witness for Him. Gail Gilligan
“Blessed are they who hear the Word of God and keep it.” Kathryn, you are truly blessed to be the type of warrior God expects all of us to be. Speaking Truth in Love rather than words of frustration brings about the understanding we seek and will be especially effective when sharing His message of Grace. Your maturity is evident in your response in a frequently encountered situation for people with chronic pain. Your Mom and Dad have another thing to be proud of you for! Love and Prayers for continued Blessings! Mary
Is there a way to just see the blogs about how you are dealing with air quality? I searched that term and nothing came up. I have CRPS (type 1) and was diagnosed 3 years ago. I also blog but not often. mellissa-rose.blogspot.com
Any updates? I would love to hear more about how you are doing? Praying for you, Mellissa
Dear Mellissa,
This is Rita MacDonald, Kathryn’s mom. I am so sorry that I haven’t checked this site for messages in so long. And mostly I am so sorry that you are dealing with CRPS!!
Yes, for Kathryn mold remediation mattered greatly to energy, and function. Lessening mold in her environment helped a little with pain but the biggest pain relief came from Neridronate. I’ve read your site and as you know, Neridronate is not available yet in the US outside of a study. Our miracle happened a year ago when Kathryn got into a Neridronate study and got the actual drug not a placebo. Without Neridronate taking down the CRPS pain, she would be too sick with pain to do all the other work we’ve done this year and to have the success she’s had this year.
Reading your site it looks like you know that CRPS probably starts in most people due to an autoimmune body, a body that inappropriately responds to irritants like mold, bacteria from ticks, certain foods, drugs etc. Doctors advised that the first irritant we lessen in Kathryn’s environment was mold. The difference was remarkable, I got a piece of my daughter back when we mold remediated but with an autoimmune body there is so much more to do.
During the last 6 months Kathryn has started supplements (with Dr. Gordon Crozier,FL) that help her body respond to irritants more appropriately, and she is working hard under a local docs care isolating foods that may matter to her health (sounds like you have already done that work). Also during the last year Kathryn responded well to a device called Quell and to Electromagnetic Pulse Therapy. Also, before Neridronate and all the treatments I just mentioned she was never able to EXERCISE consistently. And we all know that exercise can be a nightmare, treatment and cure for CRPS (I like your yoga bands!)
Know that now that I have seen your message I am praying for you in trust to continue to find answers! with love and blessings, Rita.
Hello. I am debating seeing Dr. Crozier next month. Did you have a good experience and do you recommend him? Thank you.
Dear MacDonalds,
It has been a while since I have written. I just went to both the Nephrologist and my new PCP. My kidney function has returned to what it was when I was hospitalized. Have to drink more and had a few med changes. I will see them both in 2mos. I have an EGD scheduled for April 12, a week before we come to Virginia. No answers for the gagging, no appetite, weight loss. My red cell count is low so I have very little energy. Rita, I told my PCP that I use the BREATHE and it works well for my breathing. He said it is time for there to be studies done around use of essential oils…I am giving him the link for Kathryn’s Pages as he wanted more info on Kathryn’s story. A little good coming out of misery? One more MD who is open to new information! I will see you all in a few wks. and am looking forward to it. Prayers continue that you keep finding more things to help Kathryn as she warriors on. Blessings to you all. Love, Mary
Kathryn, Rita, and Dave,
Thank you so much for the wonderful visit and words of wisdom. I now have an appointment with the head of Integrative Medicine for Aurora Heath Care. Not until June 26th, but she only consults now and my PCP is also on board. My new room is a work in progress…have a new bed, fan is in operation 24/7, everything has been wiped off or washed in special allergen killing products, carpet has been treated, men coming Sat. to look at the basement and give a quote to remove stuff and possibly do mold remediation. I have thrown up a few times since coming home and the weakness is back with a vengeance. Will keep working on things, thanks to your encouragement. Kathryn, you are a gem. Love, Mary
Dear Mary, YOU GO GIRL -THE FIGHT IS ON! I’m so thankful to hear about all that you are doing and we pray for quick progress and relief for your symptoms!!
My next thought is frustration that, like Kathryn, you weren’t guided early on by your doctors to consider your autoimmune body’s response to household mold as a probable culprit to your symptoms, Grrrrr!! Well we are going to tell others what we’ve learned as God enables us. And we’ll continue to pray that many more American clinicians train toward an Integrative approach to medicine. You’re on my heart sweet lady. ~Rita
I am wonder how she is doing lately. I am headed to Italy for the treatment as I am in the early stages of the disease and am hoping to stop it in it’s tracks. Thank you for this blog it is helpful . My biggest question is any long term side effects from the medication ?
Blessings on you .
Hi Cathy, apologies for delayed response! We check this site so rarely, Kathryn is doing better and we’re so very thankful!
Did you get a Neridronate treatment yet? How are you doing?
Yes Neridronate played a sizable part in helping Kathryn. Originally Neridronate lowered her pain from a 8-9 to 3-4. That didn’t last too long and now her numbers typically float between 5 and 7. Kathryn says for her, Neridronate’s best gift is less spikes in pain.
The treatments that we last listed on this blog are still a vital part of her improvement. In Kathryn, without those treatments, the improvement we got from the Neridronate would not hold.
So each of these are also vital to her improvement:
Quell device
CBD oil (recent and very effective addition)
Elimination diet
Eating foods according to information gained from elimination diet
Mold remediation in home
Love and blessings!
Rita MacDonald
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Very good post. I’m facing a few of these issues as well..